Meet the members of the National Ataxia Foundation, Northeast Ohio area support group and the organizers of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia. Find out who some of the people with Ataxia in Northeast Ohio are and find out the stories behind the disease and the National Ataxia Foundation Northeast Ohio area support group.
Below you can learn a little information about Jeff Mossbruger, a Cleveland Native who has become involved with the Northeast Ohio Walk n’ Roll to Cure Ataxia this year, and you can donate to him and his team at - https://ataxia.donorpages.com/WalknRoll2017NEOhio/JeffMossbruger/
What is your name?
My name is Jeff Mossbruger
When and where were you born?
Was born in Cleveland in 1966. I grew up in Parma, Ohio.
What do you do for a living?
I am on social security disability I was a taxidermist for over 20 years and worked in many fields of construction.
Are you married and do you have children?
I have been married for almost 25 years and have 3 daughter's ages 28, 22, 18
When were you diagnosed with Ataxia? How and how has it changed your life?
I was diagnosed in 2015 Idiopathic Sporadic Cerebellar Ataxia. Still no known cause. It took away lot of my creative thinking something I was known for thinking outside the box, took away my driving privileges, I have serious cognitive issues, something like this email takes me a lot of time to do, need to come back several times over a few days. I still walk unassisted most times maybe little stubborn but do stumble and lose balance, been known to walk into a few walls. the worst part is i walk sometimes like I'm drunk and the looks sometimes i get leaving a concert, a restaurant, hurts sometimes. I stutter more than slurr and have a hard time finding words, lot of days by end of day it's really difficult to talk somedays almost lose the ability to do and i do still get frustrated. Think the hardest is on the good days people think your better and your illness is over, then next time you see them your having a bad day and you have to keep explaining what it is you have.
Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?
I first came in touch last year but backed out due to not being ready emotionally and still coming to terms and changes, then I came on this last month ready to go.
I'm trying to help by raising awareness, attending the walk n roll with family and friends and to assist organizers the best way I can, they are doing an amazing job!
Have you done any other current and/or past charity volunteer work?
Yes I have been involved with numerous charity organizations, events, past sitting board positions and have a small 501c3 charity.
Describe your day to day life in a few sentences.
My day to day varies depending on how I feel, but foremost I awake up everyday thinking positive, it's a new beginning. I may not control the day or how I feel but I can control my attitude. I still get up early every morning like I was going to work and do as much as I can, either chores around the house, light yard work anything that helps me to move around.
What are your hobbies?
I like to fish, be outside and do as much as I can, gardening.
What is your favorite quote and who is it by?
I care very little if i am judged by you or by any human court; indeed, I don't even judge myself. My conscience is clear, but that does not make innocent. It's the Lord who judges me. Therefore judge nothing before the appointed time; wait til the Lord comes. He will bring to light what is hidden in darkness and will expose the motives of men's hearts. At that time each will receive his praise from God.
Please share your greatest life lesson.
A smile is everyone's language and everyone can understand, a simple smile can have a big impact.
What is your philosophy on life?
To know that my path in life has already been laid out and I have to trust the things I cannot change, but even through my darkest times you still need to be there for someone who my be in a darker moment it's only then you can rise above and see the light and become a better person.
What are your long-term personal and/or professional goals?
My long term goal is to be there for my family and fight this til the end! And hope my fight inspires others.
Some words to describe me are self motivated, protective, willing to stand up for what I believe in.
My wife is the most important person to me
In five songs, what is the soundtrack of your life?
Soulshine & ain't wasting time no more (Allman brother's) ain't no sunshine (Bill Whithers) Three little birds (Bob Marley) family tradition (Hank Williams jr.)
My Grand Goal is to move and live in Maui and swim everyday with the turtles.
What do you wish people would know, believe, and do?
That love can change everything, don't be quick to judge, respect those who may be different and that if we really wanted to we could live in peace.
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