admission tickets to the Rock and Roll Hall of Fame

Join us at The Northeast Ohio Walk n' Roll to Cure Ataxia on Aug. 14 for a chance to win great auction items like 4 admission tickets to the Rock and Roll Hall of Fame - www.rockhall.com

Northeast Ohio Walk n’ Roll To Cure Ataxia Coming August 14th

Northeast Ohio Walk n’ Roll To Cure Ataxia Coming August 14^th

NORTHEAST OHIO – The first ever Northeast Ohio Walk n’ Roll To Cure Ataxia will take place in Parma, OH on August 14^th. The Walk n’ Roll To Cure Ataxia is a fundraiser National Ataxia Foundation (NAF) groups across the world organize to raise money to help the NAF cure Ataxia, a rare neuromuscular disease. The Northeast Ohio Walk n’ Roll To Cure Ataxia is being organized by the NAF Cleveland area support group - http://ataxiafoundationcleveland.blogspot.com/. The group is for resources and discussions among anyone with Ataxia, or affected by Ataxia or a similar neuromuscular disease.

An estimated 150,000 individuals in the United States have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder. There is currently no cure for Ataxia and limited treatments for it.

The Northeast Ohio Walk n’ Roll To Cure Ataxia will take place at the Keystone Pavillion of the Cleveland Metroparks, West Creek Reservation, in Parma, OH, from 10 a.m. to 2 p.m. on August 14^th. The goal is to raise $10,000 for the National Ataxia Foundation – www.ataxia.org - and ataxia research. Register for the walk or donate today at – www.ataxia.org/walk/cleveland.

There will be a DJ, refreshments, and auction items at the Northeast Ohio Walk n’ Roll to Cure Ataxia. To join the walk is free, although donations are encouraged. Participants can take part in all the fun, enjoy the gorgeous Cleveland Metroparks Keystone Pavillian and walk along the Metroparks walking path or just sit in the pavilion to get to know the other walkers and supporters.

All who support medical research, rare diseases and family, friends, or loved ones who struggle with disabilities and diseases are welcome to the Northeast Ohio Walk n’ Roll To Cure Ataxia. Raising awareness about Ataxia and having some fun is the main goal.

Northeast Ohio Walk n’ Roll To Cure Ataxia participants will enjoy a fantastic day, help save lives and have chances to win prizes donated by the Cleveland Browns, the Lake Erie Monsters, the Lake County Captains, Levin Furniture, Ohio State Football, Kuerig, the Rock n’ Roll Hall of Fame, Road ID and Olmsted Performing Arts, among others.

The Northeast Ohio Walk n’ Roll To Cure Ataxia event has raised more than $2,000 so far, about 20% of the way to their goal of $10,000. Register for the walk or donate today at – www.ataxia.org/walk/cleveland.

The NAF Cleveland area support group was organized two years ago by Carmen Pieragastini and his wife Virginia (Ginger) who live in Willowick. Carmen developed symptoms of Ataxia about a decade ago. The support group has around 20 regular members from Fairview to Euclid to Mansfield and everywhere in between. Many of the support group members are impacted by the devastating effects of Ataxia. Ataxia can affect persons of any age. There are inherited and acquired types of ataxia. Members Michael and Julie Hammer, who live in North Olmsted, were born with an inherited type of Ataxia.

The Northeast Ohio Walk n’ Roll to Cure Ataxia will take place on August 14, 2016 from 10 a.m. to 2 p.m. at the Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation in Parma, OH. Register for the walk or donate today at – www.ataxia.org/walk/cleveland.

Find out more information about the NEO Walk n’ Roll to Cure Ataxia at https://www.facebook.com/NortheastOhioWalknRoll and find more information on the NAF and the Walk n’ Roll to Cure Ataxia events that take place across the United States at http://www.ataxia.org/events/walk_n_roll.aspx.

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July 19 meeting info

Hello All:
Excitement is mounting as we are one month AWAY FROM OUR FIRST ANNUAL WALK AND ROLL FUNDRAISER!!!!!

I talked with Sue to make sure we are on the same page and to keep updated on our progress with donations. We will be sharing an updated list  of sponsors and donations at the meeting. Be sure to go onto the webpage and create your own personal account so your friends and family can donate under your name, or they can create their own page for donations. Remember that every dollar pledged goes toward research.

As a member of the donation and basket committees, I would like to have everyone who has any donations to bring them to the meeting. I will take them and prior to the walk, I will ask members of the basket committee to meet at my house (once will probably do it) to assemble the baskets. We have some awesome donations!!!!

If you have any questions, please let me know.

Thanks,
Ginger

Walk n Roll video trailer, from past Walk n Roll

Here is an example of the awesomeness at a Walk n' Roll to Cure Ataxia, don't forget to put the NEO Walk n' Roll to Cure Ataxia on your calendar and join us for awesomeness August 14.
https://youtu.be/IXj7nWDzD3Q

Northeast Walk n' Roll Fundraising Update

We are about 15% to our fundraising goal, with just about 5 weeks to go. Visit www.ataxia.org/walk/cleveland to register and donate now, and encourage everyone you know to do the same. Let's meet our goal and cure Ataxia.