To help
raise awareness for Ataxia and promote the National Ataxia Foundation Virtual
Walk n’ Roll to Cure Ataxia it is important to put the Virtual Walk n’ Roll to
Cure Ataxia in front of people you know. Putting up posts on your social media pages
and sending out e-mails to your family and friends will help the NAF Virtual Walk
n’ Roll to Cure Ataxia succeed.
This year
each individual NAF support group in various cities – including the Northeast
Ohio area support group - will get some money from the Walk n’ Roll to Cure
Ataxia to help members pay for medical issues, so raising money will help local
Ataxians you know directly.
To help members of the Northeast Ohio Area Ataxia support
group, everyone with Ataxia, and those researching Ataxia to find a cure, if
you could put a message on your social media pages about the NAF Virtual Walk
n’ Roll to Cure Ataxia on Oct. 30, 2020 it would be much appreciated.
You, your family and friends, can all register to join the
National Ataxia Foundation Virtual Walk n’ Roll to Cure Ataxia, and donate to
it, at www.ataxia.org/WalkNEO. Donations through the NEO link
count toward our fundraising goal, of $8,000, and will make sure our members
receive some financial support.
Below is a
sample message, this is the one I put on my sites.
Please donate to the National Ataxia
Foundation Virtual Walk n’ Roll to Cure Ataxia fundraiser on Oct. 3, 2020 by
going to www.ataxia.org/WalkNEO.
As some of
you know I have Ataxia. Ataxia is a rare brain disorder that causes
neurodegenerative problems. I have difficulty with my balance, coordination,
speech, mobility and muscular functions, among other things. I can no longer walk
or run or drive, and I must use a wheelchair. My legs and fingers and other
muscles continue to deteriorate.
Several
years ago I became involved with the Cleveland area National Ataxia Foundation
(NAF) support group organized by Carmen Pieragastini. The NAF has these support
groups so the people with Ataxia do not feel alone and can share information
with one another. Since 2016 my local group has organized the Northeast Ohio
Walk n’ Roll to Cure Ataxia. This year the NAF is hosting a Virtual Walk n’
Roll to Cure Ataxia fundraiser on Oct. 3, 2020. The NEO support group, and our
friends and family and supporters, are signing up to take part in the virtual
event. We will all get online at the same time as everyone else across the
country and watch speakers, take part in prize drawings, auctions and raffles
to raise money and awareness for Ataxia. With the funds that are raised NAF
will continue to work with doctors, researchers and pharmaceutical companies to
find treatments and a cure for Ataxia, a portion of the dollars raised will
fund our local support group and help our members.
I really
would appreciate any support you can give and help in spreading Ataxia
awareness. We need to get the word out to more people so that a cure can be
found. You and your family and friends, can register for the NAF Virtual Walk
n’ Roll to Cure Ataxia on Oct. 3, 2020 by going to www.ataxia.org/WalkNEO.
You can
donate money to NAF through www.ataxia.org/WalkNEO and you can register to attend the
Virtual Walk n’ Roll to Cure Ataxia at 1 p.m. (est) on Oct. 3.
Thank you
for your help to cure Ataxia.
