For Immediate Release:
National Ataxia
Foundation (NAF) Cleveland Area Support Group Will Meet May 30th
Group members to start planning 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia
Group members to start planning 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia
NORTHEAST
OHIO –Members of the National Ataxia Foundation (NAF) Cleveland area support
group - http://ataxiafoundationcleveland.blogspot.com – will meet in May and begin
planning details and a kickoff event for the 2017 Northeast Ohio Walk n’ Roll
to Cure Ataxia.
The NAF
Cleveland area support group is a group that anyone with Ataxia, or affected by
Ataxia or a similar neuromuscular disease, can join for resources and
discussions. The group usually meets monthly in a Cuyahoga County Library or in
a restaurant for social events. The NAF Cleveland area support group was
organized two years ago by Carmen Pieragastini and his wife Virginia (Ginger)
who live in Willowick. The support group has around 20 regular members from
Fairview to Euclid to Mansfield and everywhere in between.
According
to the NAF website the word ataxia means without
coordination. People with ataxia have problems with coordination because parts
of the nervous system that control movement and balance are affected. Ataxia
may affect the fingers, hands, arms, legs, body, speech, and eye movements. The
word ataxia is often used to describe a symptom of incoordination which can be
associated with infections, injuries, other diseases, or degenerative changes
in the central nervous system. Ataxia is also used to denote a group of
specific degenerative diseases of the nervous system called the hereditary and
sporadic ataxias which are the National Ataxia Foundation’s primary emphases.
The NAF
Cleveland area support group will meet May 30th at 6:30 p.m. at the
Maple Heights Library, 5225 Library Ln. in Maple Heights Ohio, to share
thoughts and ideas on the planning of the 2017 Northeast Ohio Walk n’ Roll to
Cure Ataxia on August 27, 2017 at Edgewater Park in Cleveland.
In
August of 2016, the NAF Cleveland area support group organized the 2016 Northeast
Ohio Walk n’ Roll to Cure Ataxia at the Keystone Pavilion of the Cleveland
Metroparks, West Creek Reservation in Parma, Ohio. The event was sponsored by
the Pipe Line Development Co. (PLIDCO) of Westlake, OH and attended by about
100 people. More than $12,500 was raised for the NAF and there were prizes
auctioned off from the Cleveland Browns, the Lake Erie Monsters, ROAD ID, Levin
Furniture, Olmsted Performing Arts and more.
To find
out more about the NAF Cleveland area support group and group events and
meetings visit http://ataxiafoundationcleveland.blogspot.com. You can find information about
the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia at https://www.facebook.com/NortheastOhioWalknRoll/ and https://twitter.com/NEOWalknRoll.
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