Almost 10% of the way to our goal

The 2017 Northeast Ohio Walk n' Roll to Cure Ataxia is only a month away. The fundraising goal is $20,000, and we are almost 10% of the way there. Follow the progress below, and make sure to register and donate.
https://ataxia.donorpages.com/WalknRoll2017NEOhio/stats

Meet the members of the National Ataxia Foundation, Northeast Ohio area support group - Jeff Mossbruger

Meet the members of the National Ataxia Foundation, Northeast Ohio area support group and the organizers of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia. Find out who some of the people with Ataxia in Northeast Ohio are and find out the stories behind the disease and the National Ataxia Foundation Northeast Ohio area support group.

Below you can learn a little information about Jeff Mossbruger, a Cleveland Native who has become involved with the Northeast Ohio Walk n’ Roll to Cure Ataxia this year, and you can donate to him and his team at - https://ataxia.donorpages.com/WalknRoll2017NEOhio/JeffMossbruger/

What is your name?

My name is Jeff Mossbruger When and where were you born?

Was born in Cleveland in 1966. I grew up in Parma, Ohio. What do you do for a living?

I am on social security disability I was a taxidermist for over 20 years and worked in many fields of construction. Are you married and do you have children?

I have been married for almost 25 years and have 3 daughter's ages 28, 22, 18 When were you diagnosed with Ataxia? How and how has it changed your life?

I was diagnosed in 2015 Idiopathic Sporadic Cerebellar Ataxia. Still no known cause. It took away lot of my creative thinking something I was known for thinking outside the box, took away my driving privileges, I have serious cognitive issues, something like this email takes me a lot of time to do, need to come back several times over a few days. I still walk unassisted most times maybe little stubborn but do stumble and lose balance, been known to walk into a few walls. the worst part is i walk sometimes like I'm drunk and the looks sometimes i get leaving a concert, a restaurant, hurts sometimes. I stutter more than slurr and have a hard time finding words, lot of days by end of day it's really difficult to talk somedays almost lose the ability to do and i do still get frustrated. Think the hardest is on the good days people think your better and your illness is over, then next time you see them your having a bad day and you have to keep explaining what it is you have. Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?

I first came in touch last year but backed out due to not being ready emotionally and still coming to terms and changes, then I came on this last month ready to go.

I'm trying to help by raising awareness, attending the walk n roll with family and friends and to assist organizers the best way I can, they are doing an amazing job! Have you done any other current and/or past charity volunteer work?

Yes I have been involved with numerous charity organizations, events, past sitting board positions and have a small 501c3 charity. Describe your day to day life in a few sentences.

My day to day varies depending on how I feel, but foremost I awake up everyday thinking positive, it's a new beginning. I may not control the day or how I feel but I can control my attitude. I still get up early every morning like I was going to work and do as much as I can, either chores around the house, light yard work anything that helps me to move around. What are your hobbies?

I like to fish, be outside and do as much as I can, gardening. What is your favorite quote and who is it by?

I care very little if i am judged by you or by any human court; indeed, I don't even judge myself. My conscience is clear, but that does not make innocent. It's the Lord who judges me. Therefore judge nothing before the appointed time; wait til the Lord comes. He will bring to light what is hidden in darkness and will expose the motives of men's hearts. At that time each will receive his praise from God. Please share your greatest life lesson.

A smile is everyone's language and everyone can understand, a simple smile can have a big impact. What is your philosophy on life?

To know that my path in life has already been laid out and I have to trust the things I cannot change, but even through my darkest times you still need to be there for someone who my be in a darker moment it's only then you can rise above and see the light and become a better person. What are your long-term personal and/or professional goals?

My long term goal is to be there for my family and fight this til the end! And hope my fight inspires others. Some words to describe me are self motivated, protective, willing to stand up for what I believe in. My wife is the most important person to me In five songs, what is the soundtrack of your life?

Soulshine & ain't wasting time no more (Allman brother's) ain't no sunshine (Bill Whithers) Three little birds (Bob Marley) family tradition (Hank Williams jr.) My Grand Goal is to move and live in Maui and swim everyday with the turtles. What do you wish people would know, believe, and do?

That love can change everything, don't be quick to judge, respect those who may be different and that if we really wanted to we could live in peace.

Get Excited for the 2017 NEO Walk n' Roll to Cure Ataxia - this is what the shirts will look like

This year the National Ataxia Foundation has 2 sponsors ( Biohaven Pharmaceuticals - http://biohavenpharma.com/ - and Reata Pharmaceuticals - https://reatapharma.com/ ) who are sponsoring every Walk n' Roll to Cure Ataxia across and they are providing free t-shirts to Walk n' Roll participants. Everyone who attends the Northeast Ohio Walk n' Roll to Cure Ataxia Aug. 27 at Edgewater Park in Cleveland - https://www.clevelandmetroparks.com/parks/visit/parks/lakefront-reservation/upper-edgewater-shelter-west-half - will receive one of these event t-shirts, while supplies last. Save the Date - Aug. 27th - and register to attend the Northeast Ohio Walk n' Roll to Cure Ataxia now at http://www.ataxia.org/walk/NEOWalk

Ataxia monthly meeting on Tuesday July 25 2017

Hello everyone!

Our next meeting will be next Tuesday July 25 2017 at 130pm at the Edgewater park Upper Reserved Shelter. It will be a nice first look at the walk n roll site and a good place to make our plans.

Everyone is invited and  can get the opportunity to learn about the walk n roll planning so far.

Everyone is welcome to bring lunch and a drink for themselves.

see you there

julie clarich

Save The Date - The 2017 Northeast Ohio Walk n' Roll to Cure Ataxia will be at Edgewater Park in Cleveland Ohio on Aug. 27, 2017

https://twitter.com/NEOWalknRoll

https://www.facebook.com/NortheastOhioWalknRol

Meet the members of the National Ataxia Foundation, Northeast Ohio area support group and the organizers of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia

Meet the members of the National Ataxia Foundation, Northeast Ohio area support group and the organizers of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia. Find out who some of the people with Ataxia in Northeast Ohio are and find out the stories behind the disease and donate at http://www.ataxia.org/walk/NEOWalk to help them and others.

What is your name?
Mike Hammer

When and where were you born?
Pittsburgh, 1977

What do you do for a living?
Disability and freelance marketing and writing

Are you married and do you have children?
No I am not married and do not have children

When were you diagnosed with Ataxia? How and how has it changed your life?
I have had Ataxia since birth, I was diagnosed when about 4. It always affected me a little, made me trip and fall more, but in college is when I noticed more major problems walking. I began using a cane to walk about 10 years ago and will need a wheelchair soon

Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?
I was on the National Ataxia Foundation e-mail list and found out about the Northeast Ohio group that Carmen started at the very beginning and was at one of the first meetings.

Have you done any other current and/or past charity volunteer work?
I have volunteered time to help some local arts and education organizations and nonprofits with publicity and marketing in the past.

Name one fun fact about yourself.
I used to host a college radio show called HAM RADIO

https://ataxia.donorpages.com/WalknRoll2017NEOhio/MikeHammer

Pics from Honey Hut in Brunswick, FUNraising

Tonight at the Honey Hut in Brunswick, FUNraising for the 2017 Northeast Ohio Walk n' Roll to Cure Ataxia.
National Ataxia Foundation Northeast Ohio support group co-leader Julie Clarich and her kids.

http://www.ataxia.org/walk/NEOWalk

We are just one week away from the first 2017 NEO Walk n' Roll to Cure Ataxia fundraiser

We are just one week away from the first 2017 NEO Walk n' Roll to Cure Ataxia fundraiser Visit the Honey Hut location in Brunswick on July 18 from 5–7 p.m. and say you are with the NEO Walk n' Roll to Cure Ataxia and present the FUNraising flyer and they will donate 20% of their sales to the NEO Walk n' Roll to Cure Ataxia. Print Out the Honey Hut Fundraiser flyer below and you can get directions to the Honey Hut in Brunswick at http://www.honeyhut.com/brunswick/

Print Out the Honey Hut Fundraiser to present when you go to the Honey Hut on the Fundraiser days

Honey Hut Fundraiser Flyers to print out

2017 NEO Walk n' Roll donations are starting to come in, have you made yours?

We are 5% of the way to our goal of raising $20,000 with the 2017 NEO Walk n' Roll to Cure Ataxia
Donate NOW and register to participate and create your own team if you want at http://www.ataxia.org/walk/NEOWalk

Ataxia member bio questionnaire,2017 NEO Walk

Hey all, please answer some questions about yourself and your involvement with Ataxia to help us raise money for the National Ataxia Foundation and the 2017 Northeast Ohio Walk n' Roll to Cure Ataxia. 

If you are able to answer some questions and send me some info please e-mail me at mikey.hammer@gmail.com -  the NEO Walk n' Roll to Cure Ataxia press contact.

Complete as much of this questionnaire as you would like, to help us with publicity efforts for the 2017 NEO Walk n’ Roll to Cure Ataxia - http://www.ataxia.org/walk/NEOWalk.  The answers will be used to generate press releases, social media posts and set up interviews with newspapers, tv and radio. Specific information about the people planning the NEO Walk n’ Roll – where you are from, where you work, etc. – makes local newspaper and radio people more interested in covering the NEO Walk n’ Roll to Cure Ataxia because there is an area connection, so it will help us get some publicity for the event and to generate content and interest for the event on the social media accounts for the event. The more publicity we get the more money we can raise for the National Ataxia Foundation. Increasing our media coverage increases to amount of donors and donations we attract. Please be as specific as possible - Please be certain to use accurate spelling for any proper names.

If you have a current picture we can use on our group website - http://ataxiafoundationcleveland.blogspot.com/  - and the NEO Walk n’ Roll to Cure Ataxia Facebook page - https://www.facebook.com/NortheastOhioWalknRoll/  - and to give to the media please include it.

What is your name?
When and where were you born?
What do you do for a living?
Are you married and do you have children?
When were you diagnosed with Ataxia? How and how has it changed your life?
Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?
Have you done any other current and/or past charity volunteer work?
Name one fun fact about yourself.

If you would like to write a brief bio of yourself  I will use it to set up media coverage. You can write few paragraphs below. Here are a few prompts that people use to generate interesting biographies and catch the attention of editors and reporters and other media people that we would like to pay attention to the NEO Walk n’ Roll and give us some publicity in some form.

Describe your day to day life in a few sentences
Describe your childhood home and where it was.
Where did you grow up and what was it like there? 
What are your hobbies, interests, pets, family, sports, social causes, etc.?
What is your favorite quote and who is it by?
Please share your greatest life lesson.
What is your philosophy on life?
What are your long-term personal and/or professional goals?
What words describe you?
Who is most important to you?
In five songs, what is the soundtrack of your life?
What is your grand, audacious goal?
What do you wish people would know, believe, and do?'