Saturday, July 27, 2019

MARK YOUR CALENDAR TO ATTEND: Cleveland ADA Day August 7th

Cleveland ADA Day has been rescheduled for August 7th at Wade Oval in University Circle Cleveland. The National Ataxia Foundation Northeast Ohio area support group will be participating with an information table, providing awareness about Ataxia and promoting the upcoming 2019 Walk n' Roll to Cure Ataxia. Please join us at Cleveland ADA Day if you can. For more information on the event visit http://www.adacleveland.org.
If you have a question or need transportation etc. contact us and we will help.
See you Aug. 7th

Friday, July 19, 2019

Cleveland ADA Day rescheduled

After being cancelled because of weather, Cleveland ADA Day has been rescheduled to Aug. 7, the National Ataxia Foundation Northeast Ohio area support group is going to have an information table at ADA Day,mark it on your calendar and join us.

Tuesday, July 16, 2019

Everyone please join us Wednesday at ADA Day Cleveland

Everyone please join us Wednesday at ADA Day Cleveland to promote Ataxia Awareness and the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia
WEATHER NOTE from the ADA Day organizers: ADA Day and WOW! are “rain or shine” events. The forecast suggests that we have a fair chance of some rain, but scattered. We rent tents for this very reason. Come prepared for weather and we will make the best of any situation! We will have extra garbage bags for makeshift ponchos and baggies at the info tent if needed to protect power wheelchair controls. We will also have a number of tarps on hand. In my humble opinion, one of the most important aspects of accessibility is the mindset to overcome obstacles, including the weather. Of course, attendance for consumers and self-advocates is also a personal decision based on many factors, and we certainly respect an individual’s decision not to attend.
If you need any more information or transportation help you can contact me at mikey.hammer@gmail.com.

- Mike

Sunday, July 14, 2019

Seeking donations for 2019 NEO Walk n' Roll to Cure Ataxia

If anyone wants to donate a gift card from their company or an unused gift card to the 2019 NEO Walk n' Roll to Cure Ataxia please contact Ginger Pieragastini at vpieragastini@gmail.com

Tuesday, July 9, 2019

National Ataxia Foundation, Northeast Ohio Area Support Group to be part of ADA Day July 17th


(Northeast Ohio) - Cleveland ADA Day in Cleveland is July 17 from 4 - 7:30 pm and The National Ataxia Foundation Northeast Ohio area support group will have an information table at this exciting and educational networking and celebration event.
All group members please plan on attending and/or volunteering if you can. Please contact us if you need a ride.
Cleveland ADA Day is a fun day with great resources. It will be in Wade Oval in the University Circle in Cleveland and include Americans with Disabilities Act (ADA) organizations as well as music, food trucks and a showing of the movie Ralph Breaks the Internet at 9 pm.
Complete information about Cleveland ADA Day can be found at http://www.adacleveland.org.
The National Ataxia Foundation (NAF) represents the estimated 150,000 individuals, of all ages, in the United States that have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder. The word “ataxia” comes from the Greek word “a taxis” meaning “without order or incoordination.” Ataxia gets progressively worse and affects a person’s ability to walk, talk and use fine motor skills. There is no cure for Ataxia.
The National Ataxia Foundation Northeast Ohio (NEO) area support group - http://ataxiafoundationcleveland.blogspot.com - is organizing the 2019 Northeast Ohio Walk n’ Roll to Cure Ataxia on Sep. 22, 2019 at Lakewood Park. The support group goal is to raise Ataxia awareness and money for the National Ataxia Foundation – www.ataxia.org. NAF Walk n’ Roll to Cure Ataxia events have grown nation-wide informing tens of thousands about ataxia and raising more than $300,000 annually for research and important programs and services.
For more information about Walk n’ Roll for Ataxia events across the country visit https://ataxia.org/walk-n-roll-to-cure-ataxia.
The 2019 Northeast Ohio Walk n' Roll to Cure Ataxia will be an easy, fun, and rewarding activity. The event is open to the public, and donations, or money, materials and event day volunteers, from companies and organizations are welcomed. The Northeast Ohio Walk n’ Roll to Cure Ataxia is open to everyone. We invite friends, family, and the community to attend the event in Lakewood in Sept. and to support this great cause. Since 2016 about 300 people have attended a NEO Walk n’ Roll to Cure Ataxia and around $40,000 has been raised for the NAF, please help us keep raising awareness and funds for Ataxia.
Find more information and register to raise money and win prizes at the 2019 NEO Walk n’ Roll website - http://ataxia.org/NEOWalk