Saturday, April 29, 2017

May group meeting - Walk n' Roll info

Hello Everyone!

It is time again to start planning our 2nd Annual Walk and Roll!!!!!!!
 
Please attend the next regular meeting Tuesday, May 30, at 6:30 at the Maple Hts.Library,   5225 Library Ln Maple Heights, OH 44137

Be ready to join ideas and begin planning our Walk n Roll event. The walk n Roll is on August 27, 2017!

We need everyone to join together and help out making another successful Walk n Roll.

See you all on Tuesday May 30 at 6:30pm

- Julie Clarich

Wednesday, April 12, 2017

2017 Anual Ataxia Conference - National Ataxia Foundation

Check this out.
From the National Ataxia Foundation Annual Ataxia Conference this year.
New NAF Executive Director Joel Sutherland talks about the new Ataxia.org website on the way, free Walk n'Roll t-shirts for every participant this year, national sponsors, the new 60 for 60 fundraising campaign and more.

https://www.youtube.com/watch?v=XSXJFRRDlkc&feature=youtu.be




Copied from Youtube
"The National Ataxia Foundation recognizes its 60th Anniversary in 2017. And, while we are proud of our past, we move forward with a passionate focus on the future. We look forward with new energy based on new branding, new communication instruments and new partners. We are ready to start telling a compelling story to garner more institutional funding to build awareness, energize our community and to start building an infrastructure that is able to back our wishes and desires with action. Joel Sutherland, Executive Director presented this look to the future along with Dr Henry Paulson and Robert Bearman, Biohaven Chief Medical Officer."