Friday, March 30, 2018

2018 Annual Ataxia Conference will be streaming live on Facebook Live

We're Going Facebook Live!
We're excited to announce that we will be streaming the 2018 Annual Ataxia Conference sessions LIVE on Facebook! All you have to do is check out the NAF Facebook page to join in. "Like" our page if you haven't already - then tune in during the times below:

Thursday, April 5th - 9am-12:20pm
Friday, April 6th - 9am-12:00pm
General Session Schedule:
Welcome & Announcements
Thursday, April 5 @ 9am

Trigriluzole: A Phase 2/3 Randomized Controlled Trial in Patients with Spinocerebellar Ataxia
Thursday, April 5 @ 9:15am

NAF Update
Thursday, April 5 @ 9:35am

Living with Ataxia
Thursday, April 5 @ 10:05am

Barriers to Exercise
Thursday, April 5 @ 10:50am

10 Basic Steps for Special Needs Caregivers
Thursday, April 5 @ 11:20am

Clinical vs. Basic Science Research
Thursday, April 5 @ 11:50am

FRDA and other childhood Ataxias
Friday, April 6 @ 9am

Genetic Testing - You need to get tested: Here's why
Friday, April 6 @ 9:30am

Ataxia Investigators Meeting (AIM) Highlights
Friday, April 6 @ 10:00am

Management of Ataxia
Friday, April 6 @ 10:30am

Home Safety Based Modifications
Friday, April 6 @ 11:20am

Check out speaker photos and bios and see instructions for joining the Facebook Live broadcast at the link below.

Sunday, March 11, 2018

Group Get Together March 20, 2018


Hello everyone, 
i hope you are all doing well. I figured it was about time to get out off the house and get together! How about RED ROBIN on ROCKSIDE RD.!!! On MARCH 20, 2018 at 630pm.
Everyone is welcome to attend and bring a friend.

Carmen and Ginger will be heading off to the Ataxia Conference in April and any questions or information you would like them to to find out answers to please bring it along with you to the get together.

Hope to see everyone there

- Julie Clarich