Saturday, December 15, 2018

Info about legal assistance for those with special needs

Hello All:
The linked newsletter has tons of useful information. Please take a moment to check it out.


Our attorney, Hillary Taylor, was formerly with this law firm and assists us in our planning. She is a huge supporter of the Northeast Ohio Ataxia support group and has donated to several of our Walk and Roll events. You may contact her at 330-933-94592.
Regards,
Carmen Pieragastini


Friday, October 12, 2018

Neurologists and Specialty Clinics

Hi all,

Below is a list of Neurologists that deal with Ataxia in Ohio, there is also one movement disorder clinic in Cinci.
Carmen Pieragastini was able to gather some of this info, and some of it is on the Natational Ataxia Foundation website - https://ataxia.org/neurologists-and-specialty-clinics/  - and it will be reposted on the group blog and newly formed Facebook page - https://www.facebook.com/groups/157330301877408/  - set up by Rebecca Bartko.


Mark Walker, MD  
Department of Neurology University Hospitals - 
Case Medical Center  11100 Euclid Ave, HAN5040 Cleveland, OH 44106 
Phone: (216) 286-0315 Fax: (216) 844-4785 
Donald Gilbert, MD 
Cincinnati Children's Hospital Medical Center Movement Disorders Clinic-Neurology  
3333 Burnet Ave. ML 2015 Cincinnati, OH 45230 
Phone: (513) 636-4222 Fax: (513) 636-3980 (Sees adult patients in selected cases.)  

Fredy J. Revilla, MD 
Head, Division of Movement Disorders  
Department of Neurology University of Cincinnati 
222 Piedmont Avenue, Suite 3200 Cincinnati, Ohio 45219 
Phone: (513) 475-8730 Fax: (513) 475-8033 

Richard J. Lederman, MD, PhD  Debabrata Ghosh, MD (Sees children)  Cleveland Clinic Neurological Institute  
9500 Euclid Ave / S91  Cleveland, OH 44195 
Phone: (216) 444-5559 Fax: (216) 445-1563  

Thomas Enlow, MD 
Neurodevelopmental Center at  Akron Children’s Hospital 
215 W Bowery St, 4th Floor, Ste 4400  Akron, OH 44308 Phone: (330) 543-8050 Fax: (330) 543-8054 (Sees children)  

Yasushi Kisanuki, MD  
Department of Neurology  Division of Neurogenetics  The Ohio State University 395 W. 12th Ave, 7th Floor.  Columbus, OH 43210 
Phone: (614) 293-4969 Fax: (614) 293-4688  

The movement disorder clinic is

the list of Neurologists and Specialty Clinics on the National Ataxia Foundation website is at - https://ataxia.org/neurologists-and-specialty-clinics/

Wednesday, September 19, 2018

IAAD dinner at Cabin of Willowick, Sept 25th at 6:30 pm

There will be a social dinner outing Sept 25th at The Cabin of Willowick - http://www.thecabinofwillowick.com -  at 6:30 p.m.
Everyone is invited to join us.
Ask for the National Ataxia Foundation group when you get to The Cabin of Willowick.


Saturday, September 15, 2018

Northeast Ohio area, National Ataxia Foundation, teleconference meeting recap


Hello All:
Thank you to everyone who was able to join us on our call Wednesday evening.  
It is always great to have open dialog and share information. There is always something new to learn!

Julie Clarich reviewed the success of our most recent Walk n' Roll to Cure Ataxia at Lakewood Park and asked for feedback on what people liked or suggestions they may have for future events. One suggestion was that we would include speakers. If you have any other suggestions, please let us know. We strive to be inclusive and your input will help our events be more successful. 

We asked for ideas on future fundraising. One suggestion was to hold an indoor event during the winter (Feb/Mar). Another idea was to have an actual outdoor marathon in the Spring. This type of event should be sponsored and supported by local corporations/businesses who would assist in developing teams. Participants would pay a registration fee. It would take a lot of planning. Ginger is going to find out more about a local company that will manage the entire process and what their fee would be. We also talked about random one time events at local establishments like pizza places or bars who would split their proceeds for the night with us. Please share any ideas you may have!

Mike Hammer reminded everyone about our dinner outing on Sep. 25th in honor of International Ataxia Awareness Day. We will be meeting at The Cabin of Willowick Restaurant in Willowick, OH (28810 Lakeshore Blvd, Willowick, OH 44095 - http://www.thecabinofwillowick.com) at 6:30 pm. Everyone is invited. Just ask for the National Ataxia Foundation group. Hope you can join us!


Ginger Pieragastini shared information about the National Conference in Philadelphia this past April and reminded everyone that the 2019 conference is being held in Las Vegas at the Flamingo Hotel and Casino on March 29/30. Please check the NAF website and our Facebook page - https://www.facebook.com/NortheastOhioWalknRoll - for more information.

Carmen Pieragastini had an update on neurologists in Ohio that are listed with NAF. The list is being sent in a separate e-mail and will be posted on the Northeast Ohio area support group website -  http://ataxiafoundationcleveland.blogspot.com/


Hope to see you at the IAAD dinner on Sep. 25th!

Thursday, September 6, 2018

National Ataxia Foundation Northeast Ohio area support group: Teleconference Meeting, Wednesday June 12

National Ataxia Foundation Northeast Ohio area support group: Teleconference Meeting, Wednesday June 12: Hello All!! The next National Ataxia Foundation, Northeast Ohio area support group meeting will be a TELECONFERENCE MEETING through http:...

Teleconference Meeting, Wednesday June 12

Hello All!!
The next National Ataxia Foundation, Northeast Ohio area support group meeting will be a TELECONFERENCE MEETING throughhttp://www.freeteleconference.com on Wednesday, Sept. 12th at 6:30 p.m.. We will discuss the upcoming International Ataxia Awareness Day (IAAD) dinner outing and the awesome 2018 NEO Walk n' Roll to Cure Ataxia which took place at Lakewood Park last month

Tuesday, August 28, 2018

Thank You

Thanks to everyone who helped plan, support or generously contribute to the 2018 NEO Walk n' Roll to Cure Ataxia. It was great to see everyone who attended the event. There were about 125 attendees who had a wonderful time talking, laughing and learning, enjoying themselves and supporting each other. It was a beautiful day, we had a DJ to entertain us, lots of attendees were able to donate to win fabulous prizes and everyone did a great job raising Ataxia awareness in the community.
See you all again next time.
This Thank You message was created by Laura Ospanik who took the picture too and greatly helped us with graphics for the event, once again, this year.

Sunday, August 26, 2018

National Ataxia Foundation Northeast Ohio area support group: Success !!!

National Ataxia Foundation Northeast Ohio area support group: Success !!!: We had an awesome 2018 NEO Walk n' Roll to Cure Ataxia. It was great to see and talk to everyone who came out, and the money donated wil...

Success !!!

We had an awesome 2018 NEO Walk n' Roll to Cure Ataxia. It was great to see and talk to everyone who came out, and the money donated will go straight to the National Ataxia Foundation to help with research.

Saturday, August 25, 2018

Northeast Ohio Walk n' Roll to Cure Ataxia on WKYC

Ginger Pieragastini and Julie Clarich from the National Ataxia Foundation, Northeast Ohio area support group went on WKYC this morning to promote the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia -
https://www.wkyc.com/video/life/walk-n-roll-to-cure-ataxia/95-8231489

Friday, August 24, 2018

Friday Magazine article about the NEO Walk n' Roll to Cure Ataxia

Julie Clarich spoke to the Cleveland Plain Dealer, Friday Magazine this week to get even more people interested in the NEO Walk n' Roll to Cure Ataxia.
https://www.cleveland.com/friday/index.ssf/2018/08/walk_n_roll_calls_attention_to.html

Tuesday, August 21, 2018

Saturday, August 18, 2018

Olmsted Performing Arts tickets will be a prize at the 2018 NEO Walk n' Roll to Cure Ataxia

There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuring tickets to a performance at Olmsted Performing Arts in Berea.
To find more information on Olmsted Performing Arts visithttp://www.olmstedperformingarts.com/ orhttps://www.facebook.com/olmstedperformingarts/

Friday, August 17, 2018

2018 NORTHEAST OHIO WALK N' ROLL TO CURE ATAXIA PARTICIPANT COMMENTS

2018 NORTHEAST OHIO WALK N' ROLL TO CURE ATAXIA PARTICIPANT COMMENTS
Questions:
Your name
The city you live in
and
How did you become aware of Ataxia and the National Ataxia Foundation?
and
Why and how are you involved with the Northeast Ohio Walk n' Roll to Cure Ataxia?
Answers:
Pat Moore
Mayfield Hts
a friend is suffering from Ataxia.

Thursday, August 16, 2018

New Life Massage & Whole Living Solutions in Avon Lake supporting NEO Walk n' Roll to Cure Ataxia

There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuring a 60-minute Relaxation Massage from New Life Massage & Whole Living Solutions in Avon Lake.
Find more information on New Life Massage & Whole Living visithttps://nlmwholeliving.com/ orhttps://www.facebook.com/newlifemassagetherapyllc/


Monday, August 13, 2018

National Ataxia Foundation Northeast Ohio area support group: NEO Walk n’ Roll to Cure Ataxia Walking n’ Rolling...

National Ataxia Foundation Northeast Ohio area support group: NEO Walk n’ Roll to Cure Ataxia Walking n’ Rolling...: NEO Walk n’ Roll to Cure Ataxia Walking n’ Rolling Again – Aug. 26 at Lakewood Park LAKEWOOD, OH – The 2018 Northeast Ohio Walk n’ Rol...

NEO Walk n’ Roll to Cure Ataxia Walking n’ Rolling Again – Aug. 26 at Lakewood Park


NEO Walk n’ Roll to Cure Ataxia Walking n’ Rolling Again – Aug. 26 at Lakewood Park

LAKEWOOD, OH – The 2018 Northeast Ohio Walk n’ Roll to Cure Ataxia will be Aug. 26 at Lakewood Park. Registration begins at 10 a.m. and the Walk n’ Roll will start at 11:30 a.m..
Participants will walk or roll around Lakewood Park to raise Ataxia awareness, and take part in raffles with cash prizes and donations from the Great Lakes Science Center, the Cleveland Browns, Lucky’s Market, the Cleveland Cavaliers, the Cleveland Zoo, Target, Huntington Bank, Pizza Hut, Olmsted Performing Arts and others. A full list of event supporters can be found at http://www.ataxia.org/walk/NEOWalk.

The goal of the National Ataxia Foundation (NAF) Northeast Ohio area support group is to raise money to fight Ataxia with the 2018 Northeast Ohio (NEO) Walk n’ Roll to Cure Ataxia, and to raise awareness of Ataxia before International Ataxia Awareness Day (IAAD) on Sept. 25.
There is no cure for Ataxia. Funds raised at the Northeast Ohio Walk n’ Roll to Cure Ataxia will go straight to the NAF which is working with researchers, doctors, scientists and pharmaceutical companies to develop a cure.
Donations can be made at
http://www.ataxia.org/walk/NEOWalk or at the event.

MC Mobility - https://www.mcmobilitysystems.com/wheelchair-vans-for-sale-in-cleveland-ohio/ - is a sponsor of the 2018 NEO Walk n’ Roll to Cure Ataxia. DJ Flash Gordon - https://www.facebook.com/flash.gordon.dj/ - is scheduled to play some great music and act as announcer during the event.
The NEO Walk n’ Roll to Cure Ataxia will be Sunday August 26 at the Women’s Pavilion in Lakewood Park – 14532 Lake Ave. Lakewood, OH 44107 – from 10 a.m. to 1 p.m.
Registration for the event begins at 10 a.m. and the Walk n’ Roll starts at 11:30 a.m., cash and prize raffles will follow the Walk n’ Roll, prizes will be provided by
the Cavs, Browns, Science Center, Empowering Punch, the Cleveland Zoo, Lucky’s Market, Mitchell’s Homemade Ice Cream, Olmsted Performing Arts, New Massage and Whole Living Solutions, Luxury Nails and Spa, Pizza Hut, Hilary Taylor, E&H Ace Hardware, Neon Beach Tanning, Cleveland Blacksmithing, Once Upon A Time Toys, Target , Huntington Bank and other generous sponsors.
All are invited to enjoy the day, the beautiful scenery, the picnic and walking areas, as well as support Ataxia and your local friends battling Ataxia. Participation in the NEO Walk n’ Roll is free, but donations are encouraged.
If there is rain the Walk n’ Roll will take place entirely in the Women’s Pavillion.
You can register to participate in the 2018 NEO Walk n’ Roll to Cure Ataxia online now at
http://www.ataxia.org/walk/NEOWalk. Registrants will receive free event t-shirts.
You can find more information about Ataxia at the NAF website -  http://www.ataxia.org.

##

Saturday, August 11, 2018

National Ataxia Foundation Northeast Ohio area support group: Cleveland Browns donate prize for the 2018 NEO Wal...

National Ataxia Foundation Northeast Ohio area support group: Cleveland Browns donate prize for the 2018 NEO Wal...: There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuri...

Cleveland Browns donate prize for the 2018 NEO Walk n' Roll to Cure Ataxia

There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuring an autographed photo of DL#94 Carl Nassib of The Cleveland Browns.

Wednesday, August 8, 2018

National Ataxia Foundation Northeast Ohio area support group: Great Lakes Science Center donates prize for NEO W...

National Ataxia Foundation Northeast Ohio area support group: Great Lakes Science Center donates prize for NEO W...: There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featur...

Great Lakes Science Center donates prize for NEO Walk n' Roll to Cure Ataxia

There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuring 2 general admission tickets to the Great Lakes Science Center (the tickets can also be used at Steamship Mather or the NASA Glenn Visitor Center. Find more infor at https://www.facebook.com/greatlakessciencecenter/ and http://greatscience.com

Monday, August 6, 2018

National Ataxia Foundation Northeast Ohio area support group: 25% of the way to our fundraising goal, let's brea...

National Ataxia Foundation Northeast Ohio area support group: 25% of the way to our fundraising goal, let's brea...: We are 25% of the way to the fundraising goal the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia so far. Let;s keep it up and break ou...

25% of the way to our fundraising goal, let's break it

We are 25% of the way to the fundraising goal the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia so far. Let;s keep it up and break our goal.
Donate today if you haven't and register to participate.
Thank You.
The website for the 2018 NEO Walk n' Roll to Cure Ataxia is active and you and your friends and family, can now register to participate, form teams and donate money to help fight Ataxia.
Visit www.ataxia.org/walk/NEOWalk today and get involved. You can register to be part of the event, form a team of walkers and donate to the event.

Saturday, August 4, 2018

Lucky's Market donates to 2018 NEO Walk n' Roll

There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuring a $25 gift card and a insulated grocery bag ($10 value) from Lucky's Market in Lakewood- https://www.facebook.com/luckysmarketcleveland/ and https://www.luckysmarket.com/cleveland-ohio/

Tuesday, July 31, 2018

National Ataxia Foundation Northeast Ohio area support group: Cleveland Cavaliers, Cleveland Browns, Great Lakes...

National Ataxia Foundation Northeast Ohio area support group: Cleveland Cavaliers, Cleveland Browns, Great Lakes...: Cleveland Cavaliers, Cleveland Browns, Great Lakes Science Center, the Cleveland Zoo and other Northeast Ohio area businesses supporting t...

Cleveland Cavaliers, Cleveland Browns, Great Lakes Science Center, the Cleveland Zoo and other Northeast Ohio area businesses supporting the Walk n’ Roll to Cure Ataxia


Cleveland Cavaliers, Cleveland Browns, Great Lakes Science Center, the Cleveland Zoo and other Northeast Ohio area businesses supporting the Walk n’ Roll to Cure Ataxia

LAKEWOOD, OH – The 2018 Northeast Ohio Walk n’ Roll to Cure Ataxia will be Aug. 26 at Lakewood Park. Registration begins at 10 a.m. and the Walk n’ Roll will start at 11:30 a.m..
Participants will walk or roll around Lakewood Park to raise Ataxia awareness, and take part in raffles with cash prizes and donations from the Great Lakes Science Center, the Cleveland Browns, Lucky’s Market, the Cleveland Cavaliers, the Cleveland Zoo, Olmsted Performing Arts and others. A full list of event supporters can be found at http://www.ataxia.org/walk/NEOWalk. Many of the supporting businesses are donating prizes that will be raffled off during the 2018 Northeast Ohio Walk n’ Roll to Cure Ataxia.

The goal of the National Ataxia Foundation (NAF) Northeast Ohio area support group is to raise $10,000 to fight Ataxia with the 2018 Northeast Ohio (NEO) Walk n’ Roll to Cure Ataxia, and to raise awareness of Ataxia before International Ataxia Awareness Day (IAAD) on Sept. 25.

There is no cure for Ataxia. Funds raised at the Northeast Ohio Walk n’ Roll to Cure Ataxia will go straight to the NAF which is working with researchers, doctors, scientists and pharmaceutical companies to develop a cure.
Donations can be made at
http://www.ataxia.org/walk/NEOWalk or at the event.

MC Mobility - https://www.mcmobilitysystems.com/wheelchair-vans-for-sale-in-cleveland-ohio/ - is a sponsor of the 2018 NEO Walk n’ Roll to Cure Ataxia. DJ Flash Gordon - https://www.facebook.com/flash.gordon.dj/ - is scheduled to play some great music and act as announcer during the event.
The NEO Walk n’ Roll to Cure Ataxia will be Sunday August 26 at the Women’s Pavilion in Lakewood Park – 14532 Lake Ave. Lakewood, OH 44107 – from 10 a.m. to 1 p.m. Registration for the event begins at 10 a.m. and the Walk n’ Roll starts at 11:30 a.m., cash and prize raffles will follow the Walk n’ Roll, prizes will be provided by the Cavs, Browns, Science Center, Empowering Punch, the Cleveland Zoo, Lucky’s Market, the Cabin of Willowick, Mitchell’s Homemade Ice Cream, Olmsted Performing Arts, New Massage and Whole Living Solutions, Luxury Nails and Spa and other generous sponsors.All are invited to enjoy the day, the beautiful scenery, the picnic and walking areas, as well as support Ataxia and your local friends battling Ataxia. Participation in the NEO Walk n’ Roll is free, but donations are encouraged. If there is rain the Walk n’ Roll will take place entirely in the Women’s Pavillion. You can register to participate in the 2018 NEO Walk n’ Roll to Cure Ataxia online now at http://www.ataxia.org/walk/NEOWalk. Registrants will receive event t-shirts.
An estimated 150,000 individuals in the United States have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder.  NAF Walk n’ Roll to Cure Ataxia events have grown nation-wide informing tens of thousands about Ataxia and raising more than $300,000 annually for research and important programs and services. The NAF and all the individual support groups - including the Northeast Ohio area support group - rely solely on donations and fundraising. 
For more information about Northeast Ohio Walk n’ Roll to Cure Ataxia and to register to participate, or give a donation, visit http://www.ataxia.org/walk/NEOWalk.

The NAF was established in 1957 as a 501(c) (3) nonprofit organization. All funds raised at the NEO Walk n’ Roll to Cure Ataxia go directly to NAF with no second or third party involvement. Last year around 150 people attended the NEO Walk n’ Roll to Cure Ataxia.
##

Friday, July 27, 2018

National Ataxia Foundation Northeast Ohio area support group: more than $1,000 has been donated to the 2018 Nort...

National Ataxia Foundation Northeast Ohio area support group: more than $1,000 has been donated to the 2018 Nort...: We are off to a great start everyone, more than $1,000 has been donated to the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia so far. ...

more than $1,000 has been donated to the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia so far

We are off to a great start everyone, more than $1,000 has been donated to the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia so far. Keep it up. Donate today if you haven't and register to participate.
Thank You.
The website for the 2018 NEO Walk n' Roll to Cure Ataxia is active and you and your friends and family, can now register to participate, form teams and donate money to help fight Ataxia.
Visit www.ataxia.org/walk/NEOWalk today and get involved. You can register to be part of the event, form a team of walkers and donate to the event.


Wednesday, July 25, 2018

National Ataxia Foundation Northeast Ohio area support group: Pick a Prize event at NEO Walk n' Roll to Cure Ata...

National Ataxia Foundation Northeast Ohio area support group: Pick a Prize event at NEO Walk n' Roll to Cure Ata...: There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featurin...

Pick a Prize event at NEO Walk n' Roll to Cure Ataxia featuring a prize package from the Cleveland Cavaliers

There will be many prizes for those who attend the 2018 NEO Walk n' Roll, including a 50/50 cash event and a Pick a Prize event featuring a prize package from the Cleveland Cavaliers - https://www.facebook.com/Cavs/ 
https://www.nba.com/cavaliers/ - (a signed Larry Nance T-shirt, a Cavs hat, a Cavs tote bag, Cavs pens and pencils a Cavs wrist band and a toy squishy ball).

Saturday, July 21, 2018

MC Mobility sponsoring the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia

MC Mobility - https://www.facebook.com/mcmobilitysystems/ - is a sponsor for the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia.

Find out all about them and order your wheelchair van from them at - https://www.mcmobilitysystems.com/wheelchair-vans-for-sale-in-cleveland-ohio/

Thanks to MC Mobility for supporting the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia.

Thursday, July 19, 2018

new flyer


2018 NORTHEAST OHIO WALK N' ROLL TO CURE ATAXIA
new flyer

The 2018 Northeast Ohio Walk n’ Roll to Cure Ataxia will be Aug. 26 at Lakewood Park. Registration begins at 10 a.m. and the Walk n’ Roll will start at 11:30 a.m..
Participants will walk around Lakewood Park to raise Ataxia Awareness, and take part in raffles with cash prizes and donations from the Great Lakes Science Center, the Cleveland Browns, Lucky’s Market, Olmsted Performing Arts and others.
Donations can be made at http://www.ataxia.org/walk/NEOWalk or at the event. Money raised through auctions and raffles during the event will also go directly to the NAF.


Monday, July 16, 2018


NEO Walk n’ Roll To Cure Ataxia Raising Funds For Rare Neurodegenerative Disorder
Lakewood Park event requires no donation. Help us raise awareness and support the Ataxia community.

LAKEWOOD, OH – The 2018 Northeast Ohio Walk n’ Roll to Cure Ataxia will be Aug. 26 at Lakewood Park. Registration begins at 10 a.m. and the Walk n’ Roll will start at 11:30 a.m..
Participants will walk around Lakewood Park to raise Ataxia Awareness, and take part in raffles with cash prizes and donations from the Great Lakes Science Center, the Cleveland Browns, Lucky’s Market, Olmsted Performing Arts and others.

The goal of the National Ataxia Foundation (NAF) Northeast Ohio area support group is to raise $10,000 to fight Ataxia with the 2018 Northeast Ohio (NEO) Walk n’ Roll to Cure Ataxia, and to raise awareness of Ataxia before International Ataxia Awareness Day (IAAD) on Sept. 25.

There is no cure for Ataxia. Funds raised at the Northeast Ohio Walk n’ Roll to Cure Ataxia will go straight to the NAF which is working with researchers, doctors, scientists and pharmaceutical companies to develop a cure.
Donations can be made at
http://www.ataxia.org/walk/NEOWalk or at the event. Money raised through auctions and raffles during the event will also go directly to the NAF.

MC Mobility - https://www.mcmobilitysystems.com/wheelchair-vans-for-sale-in-cleveland-ohio/ - is a sponsor of the 2018 NEO Walk n’ Roll to Cure Ataxia.
The NEO Walk n’ Roll to Cure Ataxia will be Sunday August 26 at the Women’s Pavilion in Lakewood Park – 14532 Lake Ave. Lakewood, OH 44107 – from 10 a.m. to 1 p.m.
Registration for the event begins at 10 a.m. and the Walk n’ Roll starts at 11:30 a.m., the auction will follow the Walk n’ Roll. All are invited to enjoy the day, the beautiful scenery, the picnic and walking areas, as well as support Ataxia and your local friends battling Ataxia. Participation in the NEO Walk n’ Roll is free, but donations are encouraged.
You can register to participate in the 2018 NEO Walk n’ Roll to Cure Ataxia online now at
http://www.ataxia.org/walk/NEOWalk. Registrants will receive event t-shirts.
An estimated 150,000 individuals in the United States have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder.  NAF Walk n’ Roll to Cure Ataxia events have grown nation-wide informing tens of thousands about Ataxia and raising more than $300,000 annually for research and important programs and services. The NAF and all the individual support groups - including the Northeast Ohio area support group - rely solely on donations and fundraising. 
For more information about Northeast Ohio Walk n’ Roll to Cure Ataxia and to register to participate, or give a donation, visit http://www.ataxia.org/walk/NEOWalk.

The NAF was established in 1957 as a 501(c) (3) nonprofit organization. All funds raised at the NEO Walk n’ Roll to Cure Ataxia go directly to NAF with no second or third party involvement. Last year around 150 people attended the NEO Walk n’ Roll to Cure Ataxia.

##

Tuesday, July 3, 2018

Call For Donations And Sponsors


Call For Donations And Sponsors

From
The Northeast Ohio (NEO) Walk N’ Roll To Cure Ataxia
Sunday August 26, 2018 10 A.M. at Lakewood Park in Lakewood Ohio

The National Ataxia Foundation (NAF) Northeast Ohio area support group - http://ataxiafoundationcleveland.blogspot.com - is organizing the 2018 Northeast Ohio (NEO) Walk n’ Roll to Cure Ataxia on Sunday, August 26, 2018 from 10 a.m. to 1 p.m. at Lakewood Park in Lakewood Ohio.

The NEO Walk n’ Roll to Cure Ataxia will raise money for the National Ataxia Foundation – www.ataxia.org – to move forward with Ataxia research and awareness.

     Possible sponsorships and donations you can provide include:
     An event sponsorship - A financial donation to NAF – A gift basket item or gift card donation for auction  at the 2018 NEO Walk n’ Roll to Cure Ataxia.

Please consider a tax-deductible donation to the NAF of $250 or more to support the 2018 NEO Walk n’ Roll as a sponsor. Sponsors receive publicity on marketing, social media and website materials created for the event and help fight Ataxia.

An estimated 150,000 individuals in the United States have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder.  NAF Walk n’ Roll to Cure Ataxia events have grown nation-wide informing tens of thousands about Ataxia and raising more than $300,000 annually for research and important programs and services. The NAF was established in 1957 as a 501(c) (3) nonprofit organization – tax ID #41-0832903. NAF has received a 4-star rating from Charity Navigator, verifying that NAF exceeds industry standards and executes its mission in a financially efficient way. All funds raised at the 2018 NEO Walk n’ Roll to Cure Ataxia will go directly to NAF with no second or third-party involvement.
For more information about the National Ataxia Foundation visit www.ataxia.org.

The 2018 Northeast Ohio Walk n’ Roll to Cure Ataxia will raise awareness of Ataxia and funds for the NAF. The NEO Walk n’ Roll to Cure Ataxia will also help to promote International Ataxia Awareness Day (IADD) on September 25th. More than 225 people with Ataxia, their family members, friends and supporters, have attended the NEO Walk n’ Roll events in 2016 and 2017 and more than $25,000 has been raised.

Please help us continue to raise awareness about Ataxia and funds to fight Ataxia by supporting the NEO Walk n’ Roll to Cure Ataxia event.

The NEO Walk n’ Roll to Cure Ataxia is open to everyone. We invite friends, family, and the community to attend the event and to donate money for this great cause. Any donations or sponsorships you can offer, or any of your staff who can attend the NEO Walk n’ Roll to Cure Ataxia and help us with setup and cheer on participants, is appreciated.

For more information about the NEO Walk n’ Roll to Cure Ataxia visit the event website at www.ataxia.org/walk/NEOWalk or contact Julie Clarich, the National Ataxia Foundation Northeast Ohio area support group leader, at julieplus3@gmail.com.

Thursday, June 28, 2018

Group meeting July 11th at Lakewood Park

The next meeting of the National Ataxia Foundation Northeast Ohio area support group will be at Lakewood Park, the site of the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia on July 11 at 6:30 p.m..
The National Ataxia Foundation Northeast Ohio area support group will meet at the Women's Pavilion in Lakewood Park - 14532 Lake Ave., Lakewood, OH 44107- at 6:30 p.m. on Wednesday July 11th. Anyone interested in the group or information about Ataxia or the 2018 NEO Walk n' Roll to Cure Ataxia is invited to attend.
You can find more information about, and directions to, Lakewood City Park at the Lakewood City website - http://www.onelakewood.com - or the Lakewood Park Woman's Pavilion Facebook page - https://www.facebook.com/pages/Lakewood-Park-Womans-Pavilion/460651787342999


Thursday, June 14, 2018

Event Website for the 2018 NEO Walk n' Roll to Cure Ataxia

The website for the 2018 NEO Walk n' Roll to Cure Ataxia is now active and you. and your friends and family, can now register to participate, form teams and donate money to help fight Ataxia.
Visit www.ataxia.org/walk/NEOWalk today and get involved.


Tuesday, May 29, 2018

Meeting: June 13th, 6:30 p.m. (est)- TELECONFERENCE MEETING ABOUT NAF CONFERENCE AND 2018 WALK N' ROLL



It has been a while since we touched base and we have SO MUCH to share with you about the NAF conference in Philadelphia and preparations for the upcoming walk.
We also have been thinking about an easier, better way to keep in touch, knowing how difficult it is for everyone to physically attend our meetings. We are very excited to announce that we will begin using TELECONFERENCE MEETINGS through  http://www.freeteleconference.com   with our first call on Wednesday, June 13th at 6:30 p.m. (est)

An email invite with call-in instructions for the meeting will be sent to all the NAF Northeast Ohio Support Group members and friends. Keep an eye on your e-mails.
We hope everyone can join the meeting phone call to hear about the conference and plans that are underway for the upcoming NEO Ealk n' Roll to Cure Ataxia.

Monthly teleconference meetings are planned in the future on the second Wednesday of each month.

If you have any further questions you can e-mail mikey.hammer@gmail.com.

Friday, March 30, 2018

2018 Annual Ataxia Conference will be streaming live on Facebook Live

We're Going Facebook Live!
We're excited to announce that we will be streaming the 2018 Annual Ataxia Conference sessions LIVE on Facebook! All you have to do is check out the NAF Facebook page to join in. "Like" our page if you haven't already - then tune in during the times below:

Thursday, April 5th - 9am-12:20pm
Friday, April 6th - 9am-12:00pm
General Session Schedule:
Welcome & Announcements
Thursday, April 5 @ 9am

Trigriluzole: A Phase 2/3 Randomized Controlled Trial in Patients with Spinocerebellar Ataxia
Thursday, April 5 @ 9:15am

NAF Update
Thursday, April 5 @ 9:35am

Living with Ataxia
Thursday, April 5 @ 10:05am

Barriers to Exercise
Thursday, April 5 @ 10:50am

10 Basic Steps for Special Needs Caregivers
Thursday, April 5 @ 11:20am

Clinical vs. Basic Science Research
Thursday, April 5 @ 11:50am

FRDA and other childhood Ataxias
Friday, April 6 @ 9am

Genetic Testing - You need to get tested: Here's why
Friday, April 6 @ 9:30am

Ataxia Investigators Meeting (AIM) Highlights
Friday, April 6 @ 10:00am

Management of Ataxia
Friday, April 6 @ 10:30am

Home Safety Based Modifications
Friday, April 6 @ 11:20am

Check out speaker photos and bios and see instructions for joining the Facebook Live broadcast at the link below.