Ataxia support group - Survey for member feedback

hello all below is info and a survey from the National Ataxia Foundation ---- Hello Support Group Leaders, With the end of the year quickly approaching, we are hoping to collect some feedback from members about their Support Group experiences and what they hope to see in the coming year. Collecting this information will help us to determine where we can best be providing support for groups and their leaders and can also help you to determine what your attendees hope to see in the future. We’ve created this quick and easy survey and believe that you all are the best resource for getting it out to your members. It only takes a few minutes to complete and will be so valuable! The survey can be accessed by following this link: https://www.surveymonkey.com/r/863CMV9 If at any point, you wish to see a report of the data that is being submitted by your specific support group, I will be happy to provide that for you! Please forward to all members in your contact list as soon as possible and make sure you complete the survey as well! The survey deadline is 12/23/2021. Sarah Pilato Program Coordinator National Ataxia Foundation (763)553-0093 www.ataxia.org

Dec. 9, 11 am Chair Yoga through NAF

Do you or someone you care about struggle to find ways to stay active and mobile? For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. That's why we're offering this special Chair Yoga and Mobility online series for the global Ataxia community. Register: https://bit.ly/3rm66Pt

Upcoming NEO Ataxia support group Zoom meeting, Nov 3

Mike Hammer is inviting you to a scheduled Zoom meeting. Topic: NEO ATAXIA Support Time: Nov 3, 2021 06:00 PM Eastern Time (US and Canada) Every month on the First Wed, until Dec 1, 2021, 2 occurrence(s) Nov 3, 2021 06:00 PM Dec 1, 2021 06:00 PM Please download and import the following iCalendar (.ics) files to your calendar system. Monthly: https://us02web.zoom.us/meeting/tZIof-6przIiG9eO7Q-QhiPycQoRyyqlVwf5/ics?icsToken=98tyKuGuqzMtG9WcuBiERpwAGYqgKOvzmFhHjfpYs0jUThFbazPvNdNNAKtmAdTm Join Zoom Meeting https://us02web.zoom.us/j/86587119813?pwd=K210aDZqSEQ2TmQ4YlpqZUZRQ1h4QT09 Meeting ID: 865 8711 9813 Passcode: 137015 One tap mobile +13017158592,,86587119813#,,,,*137015# US (Washington DC) +13126266799,,86587119813#,,,,*137015# US (Chicago) Dial by your location +1 301 715 8592 US (Washington DC) +1 312 626 6799 US (Chicago) +1 929 205 6099 US (New York) +1 253 215 8782 US (Tacoma) +1 346 248 7799 US (Houston) +1 669 900 6833 US (San Jose) Meeting ID: 865 8711 9813 Passcode: 137015 Find your local number: https://us02web.zoom.us/u/keJaafNfw9

NEO Ataxia Support group monthly Zoom, next week Oct 6

 NEO ATAXIA Support

Description

this is a monthly zoom social for those interested in the NEO Ataxia support group

Time

Oct 6, 2021 06:00 PM Eastern Time (US and Canada)

Join Zoom Meeting
https://us02web.zoom.us/j/86587119813?pwd=K210aDZqSEQ2TmQ4YlpqZUZRQ1h4QT09

Today is International Ataxia Awareness Day!

 Ataxia is a rare disease with symptoms that worsen over time making it hard to walk, talk and coordinate movement. Learn more: www.ataxia.org

- Share our post to help others learn about Ataxia. #IAAD21

Zoom social meeting, NEO Ataxia support group, scheduled for Sept 1 at 6 pm

 Hey all 

The next Zoom social meeting of the National Ataxia Foundation, Northeast Ohio Ataxia support group is next week Sept 1 at 6 pm

everyone is invited

the info to connect is below

International Ataxia Awareness Day (IADD) is coming up on Sept 25th we will talk about how we will celebrate it

plus other updates on your summer activities and new events planned

and anything else you wanna talk about

see you all Sept 1 at 6 pm

Mike Hammer is inviting you to a scheduled Zoom meeting.

Topic: NEO ATAXIA Support
Time: Sep 1, 2021 06:00 PM Eastern Time (US and Canada)
        Every month on the First Wed, until Dec 1, 2021, 4 occurrence(s)
        Sep 1, 2021 06:00 PM
        Oct 6, 2021 06:00 PM
        Nov 3, 2021 06:00 PM
        Dec 1, 2021 06:00 PM
Please download and import the following iCalendar (.ics) files to your calendar system.
Monthly: https://us02web.zoom.us/meeting/tZIof-6przIiG9eO7Q-QhiPycQoRyyqlVwf5/ics?icsToken=98tyKuGuqzMtG9WcuBiERpwAGYqgKOvzmFhHjfpYs0jUThFbazPvNdNNAKtmAdTm

Join Zoom Meeting
https://us02web.zoom.us/j/86587119813?pwd=K210aDZqSEQ2TmQ4YlpqZUZRQ1h4QT09

Meeting ID: 865 8711 9813
Passcode: 137015
One tap mobile
+13017158592,,86587119813#,,,,*137015# US (Washington DC)
+13126266799,,86587119813#,,,,*137015# US (Chicago)

Dial by your location
        +1 301 715 8592 US (Washington DC)
        +1 312 626 6799 US (Chicago)
        +1 929 205 6099 US (New York)
        +1 253 215 8782 US (Tacoma)
        +1 346 248 7799 US (Houston)
        +1 669 900 6833 US (San Jose)
Meeting ID: 865 8711 9813
Passcode: 137015
Find your local number: https://us02web.zoom.us/u/keJaafNfw9

Yoga links and possible group outing, NEO Ataxia support group follow

hey all

we had a yoga instructor give a zoom chair yoga class to our group a few months ago

these are links to a recorded class on youtube that you can watch and try out and do ohn a regular basis if you missed the zoom with us

everyone who was there enjoyed it

the instructor is named

Judith Eugene

she is founder of www.LovingHandsGroup.com

this is the link for the Introduction to Chair Yoga by Judith Eugene

https://www.youtube.com/watch?v=p4SBOjXhgq8

this is the link for a full chair yoga class from Judith Eugene

https://www.youtube.com/watch?v=G-_zBtZbOXY

also

who is interested in a possible outing at a baseball game before baseball season ends

we could meet up at the Lake County Captains in Eastlake or the Lake Erie Crushers in Avon or at the Cleveland Indians/Guardians and enjoy a nice day

and we can probably help if transportation is needed

please let me know if you are interested

- mike