There is now a 2016 Northeast Ohio Walk n' Roll to Cure Ataxia Facebook page which will have all the current information about the event and will have some pictures and logos and opportunities to get involved.
Check it out, it has just been updated and will be updated weekly. Like the page and invite all your Facebook friends to like it too.
https://www.facebook.com/NortheastOhioWalknRoll/
Website for the National Ataxia Foundation Northeast Ohio area support group
Wednesday, May 25, 2016
Thursday, May 12, 2016
May meeting - May 19 at Keystone Reservation in Parma
We will be having our May Support Group meeting on Thursday, May 19th at 6:30. It will be held at the location of our Walk and Roll so we all have a chance to see it! There is a pavilion in case of inclement weather.
You van find the location (map and directions) here - http://www.clevelandmetroparks.com/Main/Keystone-Reservable-Shelter.aspx
Looking forward to seeing everyone!
Thanks, Carmen
You van find the location (map and directions) here - http://www.clevelandmetroparks.com/Main/Keystone-Reservable-Shelter.aspx
Looking forward to seeing everyone!
Thanks, Carmen
Thursday, April 21, 2016
SAVE THE DATE - National Ataxia Foundation Cleveland Support Group Announces Northeast Ohio Walk n’ Roll to Cure Ataxia On August 14, 2016
National Ataxia Foundation Cleveland Support Group Announces Northeast Ohio Walk n’ Roll to Cure Ataxia On August 14, 2016
The National Ataxia Foundation Cleveland support group is organizing the first annual Northeast Ohio Walk n’ Roll to Cure Ataxia on August 14, 2016 from 10 a.m. to 2 p.m. at the Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation.
Save the Date please.
Where: Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation.
We will need walk participants, event sponsors, event day volunteers and more.
More information will be available soon.
If you would like to be involved or have any questions please contact Mike Hammer at mikey.hammer@gmail.com.
The National Ataxia Foundation Cleveland support group is organizing the first annual Northeast Ohio Walk n’ Roll to Cure Ataxia on August 14, 2016 from 10 a.m. to 2 p.m. at the Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation.
Save the Date please.
Where: Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation.
When: August 14, 2016
For more information about the national Walk n’ Roll
events visit the NAF’s Walk n’ Roll webpage at http://www.ataxia.org/events/walk_n_roll.aspx.
More information will be available soon.
If you would like to be involved or have any questions please contact Mike Hammer at mikey.hammer@gmail.com.
Friday, April 8, 2016
Social get together April 14
Our next get together will be on Thursday April 14th at Carrabas Restaurant 5030 Tiedemann Rd Brooklyn, OH at 6:30 p.m.. See you then!
Thursday, March 31, 2016
Live Webcast from the National Ataxia Foundation conference - Sunday April 3
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Monday, March 28, 2016
March 12 meeting minutes
Here are the minutes from our meeting on Saturday:
Guest speaker Terry Johnson from A & A Medical Supply brought a U-Step walking stabilizer for us to try. It is specifically designed for individuals with walking/gait issues or that have use of only one hand. It works the opposite of a standard walker in that you use the hand brake to walk and release it to stop. It's designed with a lower center of gravity and wraps around (like a "u") to provide more stability. You can go to www.ustep.com for more information. Terry also talked about Medicare and how it applies to purchasing needed equipment (walkers, scooters, power chairs, etc.)
Guest speaker Jill Cunnington, occupational therapist for CareTenders, had great information regarding the challenges we all face on a daily basis. She was my in-home tharapist while I was recovering from my broken ankles and has helped make me stronger and safer in my home.
Don Tredent emailed us information regarding a new drug and trials that will begin in the fall from a company called Biohaven. You can read about it on their website: https://www.prweb.com/
There is also a Cerebellum and Ataxia Journal from Biomed Central which is an open access journal devoted to cerebellar research and disorders including scientific reports and clinical cases of numerous forms of ataxia. Search:cerebellumandataxias.
Sue Kresnye and Jeff Mossbruger (new member) will be attending the NAF conference in Orlando, FL April 1-3 and will have much info to share when they return.
Guest speaker Terry Johnson from A & A Medical Supply brought a U-Step walking stabilizer for us to try. It is specifically designed for individuals with walking/gait issues or that have use of only one hand. It works the opposite of a standard walker in that you use the hand brake to walk and release it to stop. It's designed with a lower center of gravity and wraps around (like a "u") to provide more stability. You can go to www.ustep.com for more information. Terry also talked about Medicare and how it applies to purchasing needed equipment (walkers, scooters, power chairs, etc.)
Guest speaker Jill Cunnington, occupational therapist for CareTenders, had great information regarding the challenges we all face on a daily basis. She was my in-home tharapist while I was recovering from my broken ankles and has helped make me stronger and safer in my home.
Don Tredent emailed us information regarding a new drug and trials that will begin in the fall from a company called Biohaven. You can read about it on their website: https://www.prweb.com/
There is also a Cerebellum and Ataxia Journal from Biomed Central which is an open access journal devoted to cerebellar research and disorders including scientific reports and clinical cases of numerous forms of ataxia. Search:cerebellumandataxias.
Sue Kresnye and Jeff Mossbruger (new member) will be attending the NAF conference in Orlando, FL April 1-3 and will have much info to share when they return.
Friday, March 11, 2016
March meeting - Saturday March 12th
Hello All:
We are so excited to be getting together for our first support group meeting of 2016 this Saturday March 12th at the Garfield Hts library. We have lots of catching up to do and some really exciting news to share for the coming year.
We will have two guests: Terry Johnson from A&A Medical Supply demonstrating a new U-Step walker. I had an opportunity to use this during one of my therapy sessions. You will be impressed! It has many features specific to individuals with gait issues. Also Jill Hunnington, an occupational therapist, will be sharing her information and insights.
It will be great to see everyone again. Hope you can join us!
Carmen and Ginger Pieragastini
We are so excited to be getting together for our first support group meeting of 2016 this Saturday March 12th at the Garfield Hts library. We have lots of catching up to do and some really exciting news to share for the coming year.
We will have two guests: Terry Johnson from A&A Medical Supply demonstrating a new U-Step walker. I had an opportunity to use this during one of my therapy sessions. You will be impressed! It has many features specific to individuals with gait issues. Also Jill Hunnington, an occupational therapist, will be sharing her information and insights.
It will be great to see everyone again. Hope you can join us!
Carmen and Ginger Pieragastini
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