Monday, March 28, 2016

March 12 meeting minutes

Here are the minutes from our meeting on Saturday:

Guest speaker Terry Johnson from A & A Medical Supply brought a U-Step walking stabilizer for us to try. It is specifically designed for individuals with walking/gait issues or that have use of only one hand. It works the opposite of a standard walker in that you use the hand brake to walk and release it to stop. It's designed with a lower center of gravity and wraps around (like a "u") to provide more stability. You can go to www.ustep.com for more information. Terry also talked about Medicare and how it applies to purchasing needed equipment (walkers, scooters, power chairs, etc.)

Guest speaker Jill Cunnington,  occupational therapist for CareTenders, had great information regarding the challenges we all face on a daily basis. She was my in-home tharapist while I was recovering from my broken ankles and has helped make me stronger and safer in my home.

Don Tredent emailed us information regarding a new drug and trials that will begin in the fall from a company called Biohaven. You can read about it on their website: https://www.prweb.com/releases/2016/03/prweb13246650.htm.

There is also a Cerebellum and Ataxia Journal from Biomed Central which is an open access journal devoted to cerebellar research and disorders including scientific reports and clinical cases of numerous forms of ataxia. Search:cerebellumandataxias.biomedcentral.com.

Sue Kresnye and Jeff Mossbruger (new member) will be attending the NAF conference in Orlando, FL April 1-3 and will have much info to share when they return.

No comments:

Post a Comment