Website for the National Ataxia Foundation Northeast Ohio area support group
Please join us for a presentation COVID-19 Vaccine and Ataxia by Arita McCoy, M.S.N., C.R.N.P., JHU Ataxia Center, followed by a Q & A 1-2pm EST
No Registration is required. CLICK HERE to join
For more information contact:
Donna DeLeno Neuworth, Ataxia Center Health Educator
Johns Hopkins University, Department of Neurology
Topic: NE Ohio Ataxia Mtg
the next monthly meeting of the National Ataxia Foundation, Northeast Ohio support group is
NAF and FARA will hold our second Hill Day on Thursday, September 10, 2020! This event will raise awareness about Ataxia and support legislation that directly impacts our communities. We want your help! We are asking members of the Ataxia community to flood the hill with correspondences on September 10th. Plan to call or email your representatives and post on social media! For more information visit https://ataxia.org/2020-ataxia-hill-day/ #AtaxiaHillDay
To help raise awareness for Ataxia and promote the National Ataxia Foundation Virtual Walk n’ Roll to Cure Ataxia it is important to put the Virtual Walk n’ Roll to Cure Ataxia in front of people you know. Putting up posts on your social media pages and sending out e-mails to your family and friends will help the NAF Virtual Walk n’ Roll to Cure Ataxia succeed.
This year each individual NAF support group in various cities – including the Northeast Ohio area support group - will get some money from the Walk n’ Roll to Cure Ataxia to help members pay for medical issues, so raising money will help local Ataxians you know directly.
To help members of the Northeast Ohio Area Ataxia support group, everyone with Ataxia, and those researching Ataxia to find a cure, if you could put a message on your social media pages about the NAF Virtual Walk n’ Roll to Cure Ataxia on Oct. 30, 2020 it would be much appreciated.
You, your family and friends, can all register to join the National Ataxia Foundation Virtual Walk n’ Roll to Cure Ataxia, and donate to it, at www.ataxia.org/WalkNEO. Donations through the NEO link count toward our fundraising goal, of $8,000, and will make sure our members receive some financial support.
Below is a sample message, this is the one I put on my sites.
Please donate to the National Ataxia Foundation Virtual Walk n’ Roll to Cure Ataxia fundraiser on Oct. 3, 2020 by going to www.ataxia.org/WalkNEO.
As some of you know I have Ataxia. Ataxia is a rare brain disorder that causes neurodegenerative problems. I have difficulty with my balance, coordination, speech, mobility and muscular functions, among other things. I can no longer walk or run or drive, and I must use a wheelchair. My legs and fingers and other muscles continue to deteriorate.
Several years ago I became involved with the Cleveland area National Ataxia Foundation (NAF) support group organized by Carmen Pieragastini. The NAF has these support groups so the people with Ataxia do not feel alone and can share information with one another. Since 2016 my local group has organized the Northeast Ohio Walk n’ Roll to Cure Ataxia. This year the NAF is hosting a Virtual Walk n’ Roll to Cure Ataxia fundraiser on Oct. 3, 2020. The NEO support group, and our friends and family and supporters, are signing up to take part in the virtual event. We will all get online at the same time as everyone else across the country and watch speakers, take part in prize drawings, auctions and raffles to raise money and awareness for Ataxia. With the funds that are raised NAF will continue to work with doctors, researchers and pharmaceutical companies to find treatments and a cure for Ataxia, a portion of the dollars raised will fund our local support group and help our members.
I really would appreciate any support you can give and help in spreading Ataxia awareness. We need to get the word out to more people so that a cure can be found. You and your family and friends, can register for the NAF Virtual Walk n’ Roll to Cure Ataxia on Oct. 3, 2020 by going to www.ataxia.org/WalkNEO.
You can donate money to NAF through www.ataxia.org/WalkNEO and you can register to attend the Virtual Walk n’ Roll to Cure Ataxia at 1 p.m. (est) on Oct. 3.
Thank you for your help to cure Ataxia.
fyi
