group phone call March 2 at 6 pm

We have a group phone call planned March 2 at 6 pm
Dial-in number: (425) 436-6375
Access code: 238411

if you have any questions email
Julie Clarich at julieplus3@gmail.com
or
Mike Hammer at mikey.hammer@gmail.com

March 2 conference call for members

Hey all,


We are planning a conference call for members on March 2nd at 6 pm.

Keep a look out for upcoming information on the conference call phone number and the passcode to join the call. We will discuss upcoming events, educational information and more.

Mark your calendars for March 2nd at 6 pm and keep your eye out for all the details for the conference call.

Feb. 3rd social meeting

Dear Ataxia friends,

Hope all of you had a Merry Christmas and a Happy New Year!! We miss seeing you all and getting together.. We are hoping to see everyone at any/all social get togethers and monthly meetings in alternating months.

So you guys can mark it on your calendars and plan attending, I send out to everyone a monthly get together and social event calendar..

For starters, Let's get together beginning in February for a social gathering and get out of the house and enjoy some dinner or just dessert!

WHEN: Monday February 3rd 2020 

WHERE: Outback Steakhouses in Rockside rd.

TIME:  6:00pm

(Anyone want to spit a blooming onion?)

This will get us started and after this I hope others will suggest a  place theyd like to meet. Musuems. Arcade. Movies Nights etc...

I hope to see you there.. let me know if you are attending so I can plan accordingly. Last minute people are always welcome to come!

I think we could all use a friendly face and to share stories and ideas that make living with this thing called Ataxia easier

Feel free to bring loved ones/caregivers, family members or friends to any social get togethers!

Any questions let me know...

- Julie Clarich

  julieplus3@gmail.com 

 

THANKS FOR ALL YOUR SUPPORT!!

THANKS FOR ALL YOUR SUPPORT!!
Dear Ataxia friends and family..

We came together in September for our Annual Northeast Ohio Walk and Roll to cure Ataxia. It was a great time and great raffle prizes ..we even raffled off a Adult Tricycle!!

Well thanks to your support the Donations are up to$9,221.32 right now!!

Just wanted to thank everyone again for raising money for such a good cause that has affected so many people..

Merry Christmas and Happy New Year to you all!

Hope to see you soon after the weather gets better and get together for some dinner out!!!

In the meantime..if anyone has as questions about Ataxia or needs a helping hand let me know so I can connect you to the right place or person.

- Julie Clarich

new info on Hereditary Ataxia

new info on Hereditary Ataxia - https://www.brainandlife.org/articles/inherited-ataxias-are-rare-genetic-conditions-that-cause-problems-with/

PLIDCO given Certificate of Appreciation for NEO Walk n' Roll to Cure Ataxia support

Carmen Pieragastini, founder of the National Ataxia Foundation Northeast Ohio area support group, and his wife Ginger visited PLIDCO - the Pipeline Development Company - in Westlake Ohio recently to thank them for their years of supporting the NEO Walk n' Roll to Cure Ataxia.

PLIDCO - https://www.plidco.com/ - has supported the NEO Walk n' Roll to Cure Ataxia from the beginning of the event in 2016. Carm and Ginger presented PLIDCO Owner and CEO Ed Smith and PLIDCO President Kim Smith with a certificate of appreciation for supporting the NEO Walk n' Roll to Cure Ataxia and brought a cake to celebrate with all the PLIDCO employees.

NEO Walk n' Roll to Cure Ataxia helping to find cure

We raised more than $9,000 at the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia on Sunday. Thank you to all who participated.