Group meeting July 11th at Lakewood Park

The next meeting of the National Ataxia Foundation Northeast Ohio area support group will be at Lakewood Park, the site of the 2018 Northeast Ohio Walk n' Roll to Cure Ataxia on July 11 at 6:30 p.m..
The National Ataxia Foundation Northeast Ohio area support group will meet at the Women's Pavilion in Lakewood Park - 14532 Lake Ave., Lakewood, OH 44107- at 6:30 p.m. on Wednesday July 11th. Anyone interested in the group or information about Ataxia or the 2018 NEO Walk n' Roll to Cure Ataxia is invited to attend.
You can find more information about, and directions to, Lakewood City Park at the Lakewood City website - http://www.onelakewood.com - or the Lakewood Park Woman's Pavilion Facebook page - https://www.facebook.com/pages/Lakewood-Park-Womans-Pavilion/460651787342999

Event Website for the 2018 NEO Walk n' Roll to Cure Ataxia

The website for the 2018 NEO Walk n' Roll to Cure Ataxia is now active and you. and your friends and family, can now register to participate, form teams and donate money to help fight Ataxia.
Visit www.ataxia.org/walk/NEOWalk today and get involved.

Meeting: June 13th, 6:30 p.m. (est)- TELECONFERENCE MEETING ABOUT NAF CONFERENCE AND 2018 WALK N' ROLL

It has been a while since we touched base and we have SO MUCH to share with you about the NAF conference in Philadelphia and preparations for the upcoming walk.

We also have been thinking about an easier, better way to keep in touch, knowing how difficult it is for everyone to physically attend our meetings. We are very excited to announce that we will begin using TELECONFERENCE MEETINGS through  http://www.freeteleconference.com   with our first call on Wednesday, June 13th at 6:30 p.m. (est)

An email invite with call-in instructions for the meeting will be sent to all the NAF Northeast Ohio Support Group members and friends. Keep an eye on your e-mails.
We hope everyone can join the meeting phone call to hear about the conference and plans that are underway for the upcoming NEO Ealk n' Roll to Cure Ataxia.

Monthly teleconference meetings are planned in the future on the second Wednesday of each month.

If you have any further questions you can e-mail mikey.hammer@gmail.com.

2018 Annual Ataxia Conference will be streaming live on Facebook Live

We're Going Facebook Live!

We're excited to announce that we will be streaming the 2018 Annual Ataxia Conference sessions LIVE on Facebook! All you have to do is check out the NAF Facebook page to join in. "Like" our page if you haven't already - then tune in during the times below: Thursday, April 5th - 9am-12:20pm Friday, April 6th - 9am-12:00pm

General Session Schedule:

Welcome & Announcements Thursday, April 5 @ 9am Trigriluzole: A Phase 2/3 Randomized Controlled Trial in Patients with Spinocerebellar Ataxia Thursday, April 5 @ 9:15am NAF Update Thursday, April 5 @ 9:35am Living with Ataxia Thursday, April 5 @ 10:05am Barriers to Exercise Thursday, April 5 @ 10:50am 10 Basic Steps for Special Needs Caregivers Thursday, April 5 @ 11:20am Clinical vs. Basic Science Research Thursday, April 5 @ 11:50am FRDA and other childhood Ataxias Friday, April 6 @ 9am Genetic Testing - You need to get tested: Here's why Friday, April 6 @ 9:30am Ataxia Investigators Meeting (AIM) Highlights Friday, April 6 @ 10:00am Management of Ataxia Friday, April 6 @ 10:30am Home Safety Based Modifications Friday, April 6 @ 11:20am Check out speaker photos and bios and see instructions for joining the Facebook Live broadcast at the link below.

How Do I Watch LIVE?

763-553-0020 | naf@ataxia.org | www.ataxia.org

Group Get Together March 20, 2018

Hello everyone, 

i hope you are all doing well. I figured it was about time to get out off the house and get together! How about RED ROBIN on ROCKSIDE RD.!!! On MARCH 20, 2018 at 630pm.

Everyone is welcome to attend and bring a friend.

Carmen and Ginger will be heading off to the Ataxia Conference in April and any questions or information you would like them to to find out answers to please bring it along with you to the get together.

Hope to see everyone there

- Julie Clarich

October 24 Meeting - Potluck at Julie's House

Hello Everyone 

  You are all invited to join the Ataxia Support Group for a Potluck dinner for all

We will meet at my home in North Olmsted on Tuesday October 24th at 6pm..

Please email or text if you are attending for directions.

We will be having a spaghetti dinner. Please bring a side or dessert to share.

I will have water, soda and ice tea...

Hope to see you for dinner.

Julie

E-mail: julieplus3@gmail.com

Phone: 440.666.6078

IAAD meeting at Bahama Breeze in Beachwood

REMEMBER:

We Look forward to any and all who can join us on September 25 at 6:30pm at Bahama Breeze in Beachwood - http://www.bahamabreeze.com/locations/oh/beachwood/cleveland-orange-village/3034 - to Celebrate International Ataxia Awareness Day. If attending please RSVP to me - julieplus3@gmail.com or 440-666-6078 - so i reserve enough tables.

Julie

Julie Clarich

E-mail: julieplus3@gmail.com

Phone: 440-666-6078