Join us for a social outing: at Wade Oval Wednesdays on Wednesday July 20 from 5:30 to 8 pm

 Join us for a social outing:

All members and family and friends are invited to join us for an in-person group meetup at ADA Cleveland day at Wade Oval Wednesdays on Wednesday July 20 from 5:30 to 8 pm.

"join ADA Cleveland as we enjoy a great concert by Tricky Dick and the Cover-Ups. We will provide accommodations, including close proximity to accessible restrooms and ASL interpreters (on stage and for individuals upon request). Come stop by the ADA Cleveland Info Tent close to the Botanical Gardens. This is where you can find interpreters and info about ADA Cleveland and the March for Access. Check out the website for WOW: www.universitycircle.org/events/2022/06/15/wow-wade-oval-wednesdays "

"Join us on July 20 for Wade Oval Wednesday as we celebrate people with disabilities! Come out and enjoy top-40 cover band Tricky Dick and The Cover Ups. If you stop by the ADA Cleveland tent, you can get a free t-shirt and bottle of water if you mention this flyer!"

Chair Yoga & Mobility for People Affected by Ataxia

Topic Chair Yoga & Mobility for People Affected by Ataxia Description Featuring Natalie Marnica of Sacred Mountain Yoga About the Session: Do you or someone you care about struggle to find ways to stay active and mobile? For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. That’s why we’re offering this special Chair Yoga and Mobility online series for the global Ataxia community. Our philosophy is simple, if you can breathe you can do yoga. We teach a non dogmatic, no- fluff approach to yoga. It’s accessible for people in chairs and wheelchairs and no previous experience is necessary to attend. Join Natalie from Sacred Mountain Yoga as she guides you through a simple sit and stand Chair Yoga class to help reduce aches, muscle tension and improve mood. Time Jun 8, 2022 12:00 PM in Central Time (US and Canada) you can register here if you would like to attend https://us02web.zoom.us/meeting/register/tZEtce2oqzsoEtcqJkKzFvLDpqnH1AafqXU6?fbclid=IwAR3lxaCN4q-PZDHD4BJYQRIwhM4qsV8HGpc6CQk5TOCnOZLc6htn9ZPef78

upcoming zoom meeting - jun 19

UPDATED we have an upcoming zoom meeting sunday jun 19 at 5pm to catch up an talk about a possible outdoor get together in july hope to see everyone there Mike Hammer is inviting you to a scheduled Zoom meeting. Topic: neo ataxia Time: Jun 19, 2022 05:00 PM Eastern Time (US and Canada) Join Zoom Meeting https://us02web.zoom.us/j/86031304962?pwd=ZVllb0ZtYTVJWEI0SWVPVVBxNnk0UT09 Meeting ID: 860 3130 4962 Passcode: 932774 One tap mobile +13017158592,,86031304962#,,,,*932774# US (Washington DC) +13126266799,,86031304962#,,,,*932774# US (Chicago) Dial by your location +1 301 715 8592 US (Washington DC) +1 312 626 6799 US (Chicago) +1 646 558 8656 US (New York) +1 253 215 8782 US (Tacoma) +1 346 248 7799 US (Houston) +1 669 900 9128 US (San Jose) Meeting ID: 860 3130 4962 Passcode: 932774 Find your local number: https://us02web.zoom.us/u/kcfwo8ngru

new ataxia study stuff

https://www.ataxia.org/naf-is-piloting-a-free-genetic-counseling-and-testing-initiative/ https://clinicaltrials.gov/ct2/show/NCT05160558 https://link.springer.com/article/10.1007/s12311-022-01394-4?fbclid=IwAR0cG3rFxEqgbc8XEtrcyna2DYX5TvM-CS-aR3nKgSDIQV81pOIZ97uie-s

NEO Ataxia support group meeting, March 20th

mark this meeting on your calendarsi am going to organize zoom meetings for the NEO Ataxians quarterly from now on i think the major topics for this meeting will be the 2022 NAF annual ataxia conferencefinding a work at home jobandworking with neurologists and physical therapists to help support groups (please think of a neurologist or physical therapist that might be open to working with NAF and our support group and we will discuss ideas the NAF is working on) talk to you all on the 20thif you have any other questions or things to discuss please let me know - mike meeting info Mike Hammer is inviting you to a scheduled Zoom meeting. Topic: neo ataxia support group Time: Mar 20, 2022 05:30 PM Eastern Time (US and Canada) Join Zoom Meeting https://us02web.zoom.us/j/86925467460?pwd=VkNRcEhxZmRsNnkxNFhoQjhlejd1UT09 Meeting ID: 869 2546 7460 Passcode: DAtzZ3

Ataxia support group - Survey for member feedback

hello all below is info and a survey from the National Ataxia Foundation ---- Hello Support Group Leaders, With the end of the year quickly approaching, we are hoping to collect some feedback from members about their Support Group experiences and what they hope to see in the coming year. Collecting this information will help us to determine where we can best be providing support for groups and their leaders and can also help you to determine what your attendees hope to see in the future. We’ve created this quick and easy survey and believe that you all are the best resource for getting it out to your members. It only takes a few minutes to complete and will be so valuable! The survey can be accessed by following this link: https://www.surveymonkey.com/r/863CMV9 If at any point, you wish to see a report of the data that is being submitted by your specific support group, I will be happy to provide that for you! Please forward to all members in your contact list as soon as possible and make sure you complete the survey as well! The survey deadline is 12/23/2021. Sarah Pilato Program Coordinator National Ataxia Foundation (763)553-0093 www.ataxia.org

Dec. 9, 11 am Chair Yoga through NAF

Do you or someone you care about struggle to find ways to stay active and mobile? For people affected by Ataxia it can be hard to stay mobile when challenged with balance and other neurological issues. That's why we're offering this special Chair Yoga and Mobility online series for the global Ataxia community. Register: https://bit.ly/3rm66Pt