2019 NEO Walk n’ Roll to Cure Ataxia and kickoff meeting scheduled

2019 Northeast Ohio Walk n’ Roll to Cure Ataxia and kickoff meeting scheduled
Group seeks event volunteers, sponsors and donors

(Northeast Ohio) – It is only a month away. The 2019 Northeast Ohio Walk n’ Roll to Cure Ataxia is on Sept. 22, and there will be tons of fun, friends, family and fundraising going on.

The National Ataxia Foundation, Northeast Ohio area support group will present the 2019 Northeast Ohio (NEO) Walk n’ Roll to Cure Ataxia on Sept. 22 at Lakewood Park in Lakewood in the Women’s Pavilion. Registration begins at 10 a.m. and the event starts at 11 a.m., it features music, a fundraising raffle with items from the Cleveland Cavaliers, Cleveland Browns and the Lake Erie Crushers, a presentation from the Cleveland Metroparks Outdoor Experiences Division and more, followed be a walk around the park to support Ataxia awareness. Ataxia is a neurological disease that sometimes causes death and always causes lower quality of life. There is no cure for Ataxia and the National Ataxia Foundation (NAF) Walk n’ Roll events raise money to help research a cure.

The 2019 NEO Walk n' Roll to Cure Ataxia will be an easy, fun, and rewarding activity. The event is open to the public and everyone is welcome. Friends, family, and the community, are invited to attend the event and help us care Ataxia. Since 2016 about 300 people have attended the annual NEO Walk n’ Roll to Cure Ataxia events and around $40,000 has been raised for the NAF. The goal of the 2019 NEO Walk n’ Roll to Cure Ataxia is to keep raising awareness and funds for Ataxia.

Event sponsors and raffle donations are needed. Each donor and sponsor will be recognized at the event and in all social media publicity for the event. Please contact Ginger Pieragastini at  vpieragastini@gmail.com to arrange a raffle donation or cash sponsorship today

Find more information and register to raise money and win prizes at the 2019 NEO Walk n’ Roll website  - http://ataxia.org/NEOWalk

There will be a 2019 NEO Walk n’ Roll to Cure Ataxia kickoff meeting to help organize fundraising teams, publicity and volunteers on Monday, August 19 at B.A. Sweetie in Cleveland  - https://sweetiescandy.com/ -   on Brookpark Road. Volunteers are needed to help with setup on event day and the group is hoping for donations  - of money or prizes – from individuals and businesses to help raise money to research a cure for Ataxia. All money raised at the 2019 NEO Walk n’ Roll to Cure Ataxia will go to the National Ataxia Foundation.

NAF represents the estimated 150,000 individuals, of all ages, in the United States that have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder. The word “ataxia” comes from the Greek word “a taxis” meaning “without order or incoordination.” Ataxia gets progressively worse and affects a person’s ability to walk, talk and use fine motor skills. There is no cure for Ataxia.

Find more information about the National Ataxia Foundation Northeast Ohio area support group  - http://ataxiafoundationcleveland.blogspot.com.

2019 NEO Walk n' Roll to Cure Ataxia event flyer

CHECK out the new flyer for the 2019 NEO Walk n' Roll to Cure Ataxia 

 contact us if we can send you some to help distribute (y)

2019 Walk n' Roll to Cure Ataxia KICKOFF MEETING

2019 Walk n' Roll KICKOFF MEETING - Mark your calendars for Monday August 19 at 4:30 pm to meeting up get fundraising materials join a committee and start working on the 2019 NEO Walk n' Roll to Cure Ataxia - we will meet at B.A.Sweetie on Brookpark Road in the ice cream shop

Raising Ataxia awareness at Cleveland ADA Day

Yesterday there here were about 20 organizations with info tables and a couple thousand people at Cleveland ADA Day and Wade Oval Wednesdays down in University Circle which is a cool weekly summer party where there are food trucks and a band and an outdoor movie.

The weather was great yesterday, like mid 80s n sunny, then a nice breeze as the evening came on

We had free face painting at the our Ataxia group table and we raised some good Ataxia awareness among attendees and made some connections with other ADA organizations 

If anyone would like some info about the organizations that were at ADA Day send a message/ You can find a whole list of the organizations that were at ADA Day on the Cleveland ADA Day website.

Above is National Ataxia Foundation, Northeast Ohio Support group founder Carmen Pieragastini working the information table at Cleveland ADA Day

2019 NEO Walk n' Roll to Cure Ataxia volunteers needed

We could use some volunteers to help us set up and tear down at the 2019 NEO Walk n' Roll to Cure Ataxia at Lakewood Park on Sept 22. Group members have trouble walking and rely on help to move things. If you can volunteer some time please mark it on your calendar and help us out to raise money to help local residents with Ataxia and raise Ataxia awareness. Thanks. https://www.facebook.com/NortheastOhioWalknRoll/

MARK YOUR CALENDAR TO ATTEND: Cleveland ADA Day August 7th

Cleveland ADA Day has been rescheduled for August 7th at Wade Oval in University Circle Cleveland. The National Ataxia Foundation Northeast Ohio area support group will be participating with an information table, providing awareness about Ataxia and promoting the upcoming 2019 Walk n' Roll to Cure Ataxia. Please join us at Cleveland ADA Day if you can. For more information on the event visit http://www.adacleveland.org.
If you have a question or need transportation etc. contact us and we will help.
See you Aug. 7th

Cleveland ADA Day rescheduled

After being cancelled because of weather, Cleveland ADA Day has been rescheduled to Aug. 7, the National Ataxia Foundation Northeast Ohio area support group is going to have an information table at ADA Day,mark it on your calendar and join us.