Tuesday, July 16, 2019

Everyone please join us Wednesday at ADA Day Cleveland

Everyone please join us Wednesday at ADA Day Cleveland to promote Ataxia Awareness and the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia
WEATHER NOTE from the ADA Day organizers: ADA Day and WOW! are “rain or shine” events. The forecast suggests that we have a fair chance of some rain, but scattered. We rent tents for this very reason. Come prepared for weather and we will make the best of any situation! We will have extra garbage bags for makeshift ponchos and baggies at the info tent if needed to protect power wheelchair controls. We will also have a number of tarps on hand. In my humble opinion, one of the most important aspects of accessibility is the mindset to overcome obstacles, including the weather. Of course, attendance for consumers and self-advocates is also a personal decision based on many factors, and we certainly respect an individual’s decision not to attend.
If you need any more information or transportation help you can contact me at mikey.hammer@gmail.com.

- Mike

Sunday, July 14, 2019

Seeking donations for 2019 NEO Walk n' Roll to Cure Ataxia

If anyone wants to donate a gift card from their company or an unused gift card to the 2019 NEO Walk n' Roll to Cure Ataxia please contact Ginger Pieragastini at vpieragastini@gmail.com

Tuesday, July 9, 2019

National Ataxia Foundation, Northeast Ohio Area Support Group to be part of ADA Day July 17th


(Northeast Ohio) - Cleveland ADA Day in Cleveland is July 17 from 4 - 7:30 pm and The National Ataxia Foundation Northeast Ohio area support group will have an information table at this exciting and educational networking and celebration event.
All group members please plan on attending and/or volunteering if you can. Please contact us if you need a ride.
Cleveland ADA Day is a fun day with great resources. It will be in Wade Oval in the University Circle in Cleveland and include Americans with Disabilities Act (ADA) organizations as well as music, food trucks and a showing of the movie Ralph Breaks the Internet at 9 pm.
Complete information about Cleveland ADA Day can be found at http://www.adacleveland.org.
The National Ataxia Foundation (NAF) represents the estimated 150,000 individuals, of all ages, in the United States that have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder. The word “ataxia” comes from the Greek word “a taxis” meaning “without order or incoordination.” Ataxia gets progressively worse and affects a person’s ability to walk, talk and use fine motor skills. There is no cure for Ataxia.
The National Ataxia Foundation Northeast Ohio (NEO) area support group - http://ataxiafoundationcleveland.blogspot.com - is organizing the 2019 Northeast Ohio Walk n’ Roll to Cure Ataxia on Sep. 22, 2019 at Lakewood Park. The support group goal is to raise Ataxia awareness and money for the National Ataxia Foundation – www.ataxia.org. NAF Walk n’ Roll to Cure Ataxia events have grown nation-wide informing tens of thousands about ataxia and raising more than $300,000 annually for research and important programs and services.
For more information about Walk n’ Roll for Ataxia events across the country visit https://ataxia.org/walk-n-roll-to-cure-ataxia.
The 2019 Northeast Ohio Walk n' Roll to Cure Ataxia will be an easy, fun, and rewarding activity. The event is open to the public, and donations, or money, materials and event day volunteers, from companies and organizations are welcomed. The Northeast Ohio Walk n’ Roll to Cure Ataxia is open to everyone. We invite friends, family, and the community to attend the event in Lakewood in Sept. and to support this great cause. Since 2016 about 300 people have attended a NEO Walk n’ Roll to Cure Ataxia and around $40,000 has been raised for the NAF, please help us keep raising awareness and funds for Ataxia.
Find more information and register to raise money and win prizes at the 2019 NEO Walk n’ Roll website - http://ataxia.org/NEOWalk

Tuesday, June 25, 2019

ADA Day Cleveland - promote Ataxia Awareness and the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia

Everyone please join us at ADA Day Cleveland to promote Ataxia Awareness and the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia.


Thursday, June 20, 2019

Northeast Ohio Ataxia group at ADA Day - mark it on your calendar and volunteer if you can

Northeast Ohio Ataxia group at ADA Day - mark it on your calendar and volunteer if you can
Cleveland ADA Day in Cleveland is July 17 from 4 - 7:30 pm and the Northeast Ohio Ataxia group will have an information table and promote Ataxia awareness and the 2019 NEO Walk n' Roll to Cure Ataxia. We need some volunteers to help work the table and attend the event with us, and everyone should attend, because it is FREE and Accessible and Fun with great resources.
Cleveland ADA Day will be in Wade Oval in the University Circle in Cleveland and include Americans with Disabilities Act (ADA) organizations as well as music, food trucks and a showing of the movie Ralph Breaks the Internet at 9 pm.
Complete information about Cleveland ADA Day can be found at http://www.adacleveland.org.
Please plan on attending and/or volunteering if you can.
The closest parking lots (all with ADA spots, listed by proximity) are:
- Cleveland Botanical Garden Parking Garage: 11030 East Boulevard, Cleveland, OH 44106.
- Cleveland Museum of Natural History: 1 Wade Oval, Cleveland, OH 44106
and
- Cleveland Museum of Art: 11150 East Boulevard, Cleveland, OH 44106
FREE shuttle service will be available for transport around Wade Oval and to nearby parking lots by request. Those wishing to utilize shuttle service around Wade Oval to and from nearby parking lots should check in at the information stations upon arrival to schedule a ride.

Find out info about all the Cleveland ADA member organizations at http://www.adacleveland.org/resource-guide/
Full directions and parking info for Cleveland ADA Day can be found here - https://www.universitycircle.org/vis…/getting-around-parking


Wednesday, June 12, 2019

UPCOMING ATAXIA GROUP EVENTS AND VOLUNTEERS NEEDED

UPCOMING ATAXIA GROUP EVENTS AND VOLUNTEERS NEEDED

Hello All,
I am Julie Clarich, from the Northeast Ohio Ataxia Support Group. We have been busy planning out the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia. To make the 2019 NEO Walk n' Roll event great we still welcome anyone who would like to volunteer before, during or after the event in Lakewood Park on Sept 22.

Before the walk n' roll there is an event in Cleveland called ADA Day at WOW! it is an event held in Wade Oval in the University Square in Cleveland that includes Americans with Disabilities Act (ADA) groups and organizations as well as music, food trucks and a showing of the movie Ralph Breaks the Internet at 9 pm.

The Northeast Ohio Ataxia group will be having our own table at the event to promote the National Ataxia Foundation (NAF) our local group and the 2019 NEO Walk n' Roll to Cure Ataxia.
All are invited to attend this free event on July 17, 2019 at Wade Oval which starts at 4 pm. The Resource Fair, with information tables from dozens of local groups and organizations, will be from 4 to 7:30 pm, the concert is at 6 pm and Ralph Breaks the Internet will be shown at 9 pm.
Complete information about Cleveland ADA Day can be found at http://www.adacleveland.org.

Anyone looking to donate your time and talents to either Cleveland ADA Day or the 2019 NEO Walk n' Roll please reach out and let me know.
Thanks, and see you guys at the events,
Julie Clarich
440-666-6078
or Virginia Pieragastini
vpieragastini@gmail.com

Monday, June 10, 2019

2019 Northeast Ohio Walk n' Roll to Cure Ataxia sign up

Check out the new logo



and the new event page

http://ataxia.org/NEOWalk


for the 2019 Northeast Ohio Walk n' Roll to Cure Ataxia and sign up and start raising money and volunteer with us now