Ataxia monthly meeting on Tuesday July 25 2017

Hello everyone!

Our next meeting will be next Tuesday July 25 2017 at 130pm at the Edgewater park Upper Reserved Shelter. It will be a nice first look at the walk n roll site and a good place to make our plans.

Everyone is invited and  can get the opportunity to learn about the walk n roll planning so far.

Everyone is welcome to bring lunch and a drink for themselves.

see you there

julie clarich

Save The Date - The 2017 Northeast Ohio Walk n' Roll to Cure Ataxia will be at Edgewater Park in Cleveland Ohio on Aug. 27, 2017

https://twitter.com/NEOWalknRoll

https://www.facebook.com/NortheastOhioWalknRol

Meet the members of the National Ataxia Foundation, Northeast Ohio area support group and the organizers of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia

Meet the members of the National Ataxia Foundation, Northeast Ohio area support group and the organizers of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia. Find out who some of the people with Ataxia in Northeast Ohio are and find out the stories behind the disease and donate at http://www.ataxia.org/walk/NEOWalk to help them and others.

What is your name?
Mike Hammer

When and where were you born?
Pittsburgh, 1977

What do you do for a living?
Disability and freelance marketing and writing

Are you married and do you have children?
No I am not married and do not have children

When were you diagnosed with Ataxia? How and how has it changed your life?
I have had Ataxia since birth, I was diagnosed when about 4. It always affected me a little, made me trip and fall more, but in college is when I noticed more major problems walking. I began using a cane to walk about 10 years ago and will need a wheelchair soon

Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?
I was on the National Ataxia Foundation e-mail list and found out about the Northeast Ohio group that Carmen started at the very beginning and was at one of the first meetings.

Have you done any other current and/or past charity volunteer work?
I have volunteered time to help some local arts and education organizations and nonprofits with publicity and marketing in the past.

Name one fun fact about yourself.
I used to host a college radio show called HAM RADIO

https://ataxia.donorpages.com/WalknRoll2017NEOhio/MikeHammer

Pics from Honey Hut in Brunswick, FUNraising

Tonight at the Honey Hut in Brunswick, FUNraising for the 2017 Northeast Ohio Walk n' Roll to Cure Ataxia.
National Ataxia Foundation Northeast Ohio support group co-leader Julie Clarich and her kids.

http://www.ataxia.org/walk/NEOWalk

We are just one week away from the first 2017 NEO Walk n' Roll to Cure Ataxia fundraiser

We are just one week away from the first 2017 NEO Walk n' Roll to Cure Ataxia fundraiser Visit the Honey Hut location in Brunswick on July 18 from 5–7 p.m. and say you are with the NEO Walk n' Roll to Cure Ataxia and present the FUNraising flyer and they will donate 20% of their sales to the NEO Walk n' Roll to Cure Ataxia. Print Out the Honey Hut Fundraiser flyer below and you can get directions to the Honey Hut in Brunswick at http://www.honeyhut.com/brunswick/

Print Out the Honey Hut Fundraiser to present when you go to the Honey Hut on the Fundraiser days

Honey Hut Fundraiser Flyers to print out

2017 NEO Walk n' Roll donations are starting to come in, have you made yours?

We are 5% of the way to our goal of raising $20,000 with the 2017 NEO Walk n' Roll to Cure Ataxia
Donate NOW and register to participate and create your own team if you want at http://www.ataxia.org/walk/NEOWalk

Ataxia member bio questionnaire,2017 NEO Walk

Hey all, please answer some questions about yourself and your involvement with Ataxia to help us raise money for the National Ataxia Foundation and the 2017 Northeast Ohio Walk n' Roll to Cure Ataxia. 

If you are able to answer some questions and send me some info please e-mail me at mikey.hammer@gmail.com -  the NEO Walk n' Roll to Cure Ataxia press contact.

Complete as much of this questionnaire as you would like, to help us with publicity efforts for the 2017 NEO Walk n’ Roll to Cure Ataxia - http://www.ataxia.org/walk/NEOWalk.  The answers will be used to generate press releases, social media posts and set up interviews with newspapers, tv and radio. Specific information about the people planning the NEO Walk n’ Roll – where you are from, where you work, etc. – makes local newspaper and radio people more interested in covering the NEO Walk n’ Roll to Cure Ataxia because there is an area connection, so it will help us get some publicity for the event and to generate content and interest for the event on the social media accounts for the event. The more publicity we get the more money we can raise for the National Ataxia Foundation. Increasing our media coverage increases to amount of donors and donations we attract. Please be as specific as possible - Please be certain to use accurate spelling for any proper names.

If you have a current picture we can use on our group website - http://ataxiafoundationcleveland.blogspot.com/  - and the NEO Walk n’ Roll to Cure Ataxia Facebook page - https://www.facebook.com/NortheastOhioWalknRoll/  - and to give to the media please include it.

What is your name?
When and where were you born?
What do you do for a living?
Are you married and do you have children?
When were you diagnosed with Ataxia? How and how has it changed your life?
Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?
Have you done any other current and/or past charity volunteer work?
Name one fun fact about yourself.

If you would like to write a brief bio of yourself  I will use it to set up media coverage. You can write few paragraphs below. Here are a few prompts that people use to generate interesting biographies and catch the attention of editors and reporters and other media people that we would like to pay attention to the NEO Walk n’ Roll and give us some publicity in some form.

Describe your day to day life in a few sentences
Describe your childhood home and where it was.
Where did you grow up and what was it like there? 
What are your hobbies, interests, pets, family, sports, social causes, etc.?
What is your favorite quote and who is it by?
Please share your greatest life lesson.
What is your philosophy on life?
What are your long-term personal and/or professional goals?
What words describe you?
Who is most important to you?
In five songs, what is the soundtrack of your life?
What is your grand, audacious goal?
What do you wish people would know, believe, and do?'

2017 NEO Walk n' Roll to Cure Ataxia - we need you again

Dear past Northeast Ohio Walk n’ Roll to Cure Ataxia participants

Thank you for your participation in last year’s 1st Annual NEO Walk n’ Roll to Cure Ataxia. Your participation and support of this initiative had a significant impact in the success of the 2016 Walk n’ Roll to Cure Ataxia Campaign. With your help, we hope to keep the momentum going!

Fundraising efforts for the 2nd Annual NEO Walk n’ Roll to Cure Ataxia has begun! We invite you to participate again in this year’s event to continue to increase ataxia awareness and further support important National Ataxia Foundation programs.
Join the Walk n’ Roll at www.ataxia.org/walk/NEOWalk.

Check out the new printable pledge form to help you collect cash and check donations in support of your efforts. Donations collected on the printable pledge form will also be reflected on your personal or team fundraising page.

Personalize your online personal and team fundraising pages with your fundraising goal, post a picture, tell your own story. You might explain how Ataxia has affected your life. We will help you set up the page if you would like assistance.

The 2016 NEO Walk n’ Roll proved that the Northeast Ohio Ataxia Community is united through the Walk n’ Roll to Cure Ataxia initiative to achieve a greater awareness about ataxia everywhere. Thank you for your continued support!

We look forward to seeing you at this year’s event on Sunday, August 27th at Cleveland Metroparks Lakefront Reservation Edgewater Park - Upper Edgewater West Reserved Shelter, Located off Route 6/Memorial Shoreway, 6500 Cleveland Memorial Shoreway, Cleveland, OH 44102.

Let’s Get Walking & Rolling to Cure Ataxia!
www.ataxia.org/walk/NEOWalk