Monday, July 10, 2017

2017 NEO Walk n' Roll donations are starting to come in, have you made yours?

We are 5% of the way to our goal of raising $20,000 with the 2017 NEO Walk n' Roll to Cure Ataxia
Donate NOW and register to participate and create your own team if you want at http://www.ataxia.org/walk/NEOWalk


Monday, July 3, 2017

Ataxia member bio questionnaire,2017 NEO Walk

Hey all, please answer some questions about yourself and your involvement with Ataxia to help us raise money for the National Ataxia Foundation and the 2017 Northeast Ohio Walk n' Roll to Cure Ataxia. 

If you are able to answer some questions and send me some info please e-mail me at mikey.hammer@gmail.com -  the NEO Walk n' Roll to Cure Ataxia press contact.


Complete as much of this questionnaire as you would like, to help us with publicity efforts for the 2017 NEO Walk n’ Roll to Cure Ataxia - http://www.ataxia.org/walk/NEOWalk.  The answers will be used to generate press releases, social media posts and set up interviews with newspapers, tv and radio. Specific information about the people planning the NEO Walk n’ Roll – where you are from, where you work, etc. – makes local newspaper and radio people more interested in covering the NEO Walk n’ Roll to Cure Ataxia because there is an area connection, so it will help us get some publicity for the event and to generate content and interest for the event on the social media accounts for the event. The more publicity we get the more money we can raise for the National Ataxia Foundation. Increasing our media coverage increases to amount of donors and donations we attract. Please be as specific as possible - Please be certain to use accurate spelling for any proper names.
If you have a current picture we can use on our group website - http://ataxiafoundationcleveland.blogspot.com/  - and the NEO Walk n’ Roll to Cure Ataxia Facebook page - https://www.facebook.com/NortheastOhioWalknRoll/  - and to give to the media please include it.

What is your name?
When and where were you born?
What do you do for a living?
Are you married and do you have children?
When were you diagnosed with Ataxia? How and how has it changed your life?
Why did you become involved with the National Ataxia Foundation, Northeast Ohio area support group? Why and how are you helping with the NEO Walk n’ Roll to Cure Ataxia?
Have you done any other current and/or past charity volunteer work?
Name one fun fact about yourself.

If you would like to write a brief bio of yourself  I will use it to set up media coverage. You can write few paragraphs below. Here are a few prompts that people use to generate interesting biographies and catch the attention of editors and reporters and other media people that we would like to pay attention to the NEO Walk n’ Roll and give us some publicity in some form.
Describe your day to day life in a few sentences
Describe your childhood home and where it was.
Where did you grow up and what was it like there? 

What are your hobbies, interests, pets, family, sports, social causes, etc.?
What is your favorite quote and who is it by?
Please share your greatest life lesson.
What is your philosophy on life?
What are your long-term personal and/or professional goals?
What words describe you?
Who 
is most important to you?
In five songs, what is the soundtrack of your life?
What is your grand, audacious goal?
What do you wish people would know, believe, and 
do?'

Wednesday, June 28, 2017

2017 NEO Walk n' Roll to Cure Ataxia - we need you again


Dear past Northeast Ohio Walk n’ Roll to Cure Ataxia participants
Thank you for your participation in last year’s 1st Annual NEO Walk n’ Roll to Cure Ataxia. Your participation and support of this initiative had a significant impact in the success of the 2016 Walk n’ Roll to Cure Ataxia Campaign. With your help, we hope to keep the momentum going!
Fundraising efforts for the 2nd Annual NEO Walk n’ Roll to Cure Ataxia has begun! We invite you to participate again in this year’s event to continue to increase ataxia awareness and further support important National Ataxia Foundation programs.
Join the Walk n’ Roll at www.ataxia.org/walk/NEOWalk.
Check out the new printable pledge form to help you collect cash and check donations in support of your efforts. Donations collected on the printable pledge form will also be reflected on your personal or team fundraising page.
Personalize your online personal and team fundraising pages with your fundraising goal, post a picture, tell your own story. You might explain how Ataxia has affected your life. We will help you set up the page if you would like assistance.
The 2016 NEO Walk n’ Roll proved that the Northeast Ohio Ataxia Community is united through the Walk n’ Roll to Cure Ataxia initiative to achieve a greater awareness about ataxia everywhere. Thank you for your continued support!
We look forward to seeing you at this year’s event on Sunday, August 27th at Cleveland Metroparks Lakefront Reservation Edgewater Park - Upper Edgewater West Reserved Shelter, Located off Route 6/Memorial Shoreway, 6500 Cleveland Memorial Shoreway, Cleveland, OH 44102.
Let’s Get Walking & Rolling to Cure Ataxia!
www.ataxia.org/walk/NEOWalk

Wednesday, June 21, 2017

June 27th dinner and walk a thon discussion!

hello everyone,

i would like to invite you to dinner on June 27th at Red Robin on Rockside at 630pm. Come and eat and catch up with the group.

Also we have begun planning and setting up this years Walk n Roll on August 27th 2017. We would love to get all members involved with the walk. Even if its just handing out and placement of the Walk n Roll flyers. Please remember to tell n email all your friends and family. Add it to your facebook pages n add it as a signiture on all emails you sent.

Anyone who would like to help out with the walk even in the smallest way please call me at 440-666-6078 or email julieplus3@gmail.com.

I would love to see everyone for dinner regardless and catch up with old friends.

julie


Save The Date - The 2017 Northeast Ohio Walk n' Roll to Cure Ataxia will be at Edgewater Park in Cleveland Ohio on Aug. 27, 2017

Sunday, June 18, 2017

Upcoming NEO Walk n' Roll fundraisers

Upcoming NEO Walk n' Roll fundraisers

Visit the Honey Hut location in Brunswick on July 18 from 5–7 p.m. 
and
the Honey Hut location in Brecksville on August 7 from 6–8 p.m. 
and say you are with the NEO Walk n' Roll to Cure Ataxia and they will donate 20% of their sales to the NEO Walk n' Roll.




Print Out the Honey Hut Fundraiser to present when you go to the Honey Hut on the Fundraiser days

Saturday, June 3, 2017

NAF Cleveland Area Support Group info table at UH Free Health and Safety Day June 17

Join us at UH Free Health and Safety Day at UH Ahuja Medical Center in Beachwood, OH June 17
We will have members at the UH Health and Safety Day giving out info about National Ataxia Foundation and the upcoming 2017 Northeast Ohio Walk n' Roll to Cure Ataxia.

If any group member would like to attend the event and set at our info table with us that would be great. We could use the help.

If you would like to attend the event please e-mail Ginger at vpieragastini@gmail.com

Info about the UH Free Health and Safety Day at UH Ahuja Medical Center in Beachwood, OH is below


Jun 17, 2017
9 a.m. - 1 p.m. at UH Ahuja Medical Center, 3999 Richmond Rd, Beachwood, OH 44122. Stop by the NAF information table at this free event to celebrate wellness. At this event there will be free health screenings, education and demonstrations – plus family-friendly activities featuring the UH Rainbow Babies & Children’s Hospital Safety Squad. Preregistration is required for select health screenings. For more information or to register, call 800-883-3674.

2017 NEO Walk n' Roll Kickoff ice cream social in July

Stay tuned, we will have a 2107 Northeast Ohio Walk n' Roll kickoff event at Honey Hut Ice Cream - http://www.honeyhut.com/ - in July