June 27th dinner and walk a thon discussion!

hello everyone,

i would like to invite you to dinner on June 27th at Red Robin on Rockside at 630pm. Come and eat and catch up with the group.

Also we have begun planning and setting up this years Walk n Roll on August 27th 2017. We would love to get all members involved with the walk. Even if its just handing out and placement of the Walk n Roll flyers. Please remember to tell n email all your friends and family. Add it to your facebook pages n add it as a signiture on all emails you sent.

Anyone who would like to help out with the walk even in the smallest way please call me at 440-666-6078 or email julieplus3@gmail.com.

I would love to see everyone for dinner regardless and catch up with old friends.

julie

Save The Date - The 2017 Northeast Ohio Walk n' Roll to Cure Ataxia will be at Edgewater Park in Cleveland Ohio on Aug. 27, 2017

https://twitter.com/NEOWalknRoll

https://www.facebook.com/NortheastOhioWalknRoll

Upcoming NEO Walk n' Roll fundraisers

Upcoming NEO Walk n' Roll fundraisers

Visit the Honey Hut location in Brunswick on July 18 from 5–7 p.m. 

and

the Honey Hut location in Brecksville on August 7 from 6–8 p.m. 

and say you are with the NEO Walk n' Roll to Cure Ataxia and they will donate 20% of their sales to the NEO Walk n' Roll.

http://www.honeyhut.com/brunswick/

http://www.honeyhut.com/brecksville/

Print Out the Honey Hut Fundraiser to present when you go to the Honey Hut on the Fundraiser days

Honey Hut Fundraiser Flyers to print out

NAF Cleveland Area Support Group info table at UH Free Health and Safety Day June 17

Join us at UH Free Health and Safety Day at UH Ahuja Medical Center in Beachwood, OH June 17
We will have members at the UH Health and Safety Day giving out info about National Ataxia Foundation and the upcoming 2017 Northeast Ohio Walk n' Roll to Cure Ataxia.

If any group member would like to attend the event and set at our info table with us that would be great. We could use the help.

If you would like to attend the event please e-mail Ginger at vpieragastini@gmail.com

Info about the UH Free Health and Safety Day at UH Ahuja Medical Center in Beachwood, OH is below

Jun 17, 2017

9 a.m. - 1 p.m. at UH Ahuja Medical Center, 3999 Richmond Rd, Beachwood, OH 44122. Stop by the NAF information table at this free event to celebrate wellness. At this event there will be free health screenings, education and demonstrations – plus family-friendly activities featuring the UH Rainbow Babies & Children’s Hospital Safety Squad. Preregistration is required for select health screenings. For more information or to register, call 800-883-3674.

http://www.uhhospitals.org/health-and-wellness/classes-and-events/2017/06/2017-06-17-free-family-health-and-safety-day

2017 NEO Walk n' Roll Kickoff ice cream social in July

Stay tuned, we will have a 2107 Northeast Ohio Walk n' Roll kickoff event at Honey Hut Ice Cream - http://www.honeyhut.com/ - in July

National Ataxia Foundation (NAF) Cleveland Area Support Group Will Meet May 30th Group members to start planning 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia

For Immediate Release:

National Ataxia Foundation (NAF) Cleveland Area Support Group Will Meet May 30^th
Group members to start planning 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia

NORTHEAST OHIO –Members of the National Ataxia Foundation (NAF) Cleveland area support group - http://ataxiafoundationcleveland.blogspot.com – will meet in May and begin planning details and a kickoff event for the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia.

The NAF Cleveland area support group is a group that anyone with Ataxia, or affected by Ataxia or a similar neuromuscular disease, can join for resources and discussions. The group usually meets monthly in a Cuyahoga County Library or in a restaurant for social events. The NAF Cleveland area support group was organized two years ago by Carmen Pieragastini and his wife Virginia (Ginger) who live in Willowick. The support group has around 20 regular members from Fairview to Euclid to Mansfield and everywhere in between.

According to the NAF website the word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. The word ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system. Ataxia is also used to denote a group of specific degenerative diseases of the nervous system called the hereditary and sporadic ataxias which are the National Ataxia Foundation’s primary emphases.

The NAF Cleveland area support group will meet May 30^th at 6:30 p.m. at the Maple Heights Library, 5225 Library Ln. in Maple Heights Ohio, to share thoughts and ideas on the planning of the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia on August 27, 2017 at Edgewater Park in Cleveland.

In August of 2016, the NAF Cleveland area support group organized the 2016 Northeast Ohio Walk n’ Roll to Cure Ataxia at the Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation in Parma, Ohio. The event was sponsored by the Pipe Line Development Co. (PLIDCO) of Westlake, OH and attended by about 100 people. More than $12,500 was raised for the NAF and there were prizes auctioned off from the Cleveland Browns, the Lake Erie Monsters, ROAD ID, Levin Furniture, Olmsted Performing Arts and more.

To find out more about the NAF Cleveland area support group and group events and meetings visit http://ataxiafoundationcleveland.blogspot.com. You can find information about the 2017 Northeast Ohio Walk n’ Roll to Cure Ataxia at https://www.facebook.com/NortheastOhioWalknRoll/ and https://twitter.com/NEOWalknRoll.

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May group meeting - Walk n' Roll info

Hello Everyone!

It is time again to start planning our 2nd Annual Walk and Roll!!!!!!!

 

Please attend the next regular meeting Tuesday, May 30, at 6:30 at the Maple Hts.Library,   5225 Library Ln Maple Heights, OH 44137

Be ready to join ideas and begin planning our Walk n Roll event. The walk n Roll is on August 27, 2017!

We need everyone to join together and help out making another successful Walk n Roll.

See you all on Tuesday May 30 at 6:30pm

- Julie Clarich

2017 Anual Ataxia Conference - National Ataxia Foundation

Check this out.
From the National Ataxia Foundation Annual Ataxia Conference this year.
New NAF Executive Director Joel Sutherland talks about the new Ataxia.org website on the way, free Walk n'Roll t-shirts for every participant this year, national sponsors, the new 60 for 60 fundraising campaign and more.

https://www.youtube.com/watch?v=XSXJFRRDlkc&feature=youtu.be




Copied from Youtube
"The National Ataxia Foundation recognizes its 60th Anniversary in 2017. And, while we are proud of our past, we move forward with a passionate focus on the future. We look forward with new energy based on new branding, new communication instruments and new partners. We are ready to start telling a compelling story to garner more institutional funding to build awareness, energize our community and to start building an infrastructure that is able to back our wishes and desires with action. Joel Sutherland, Executive Director presented this look to the future along with Dr Henry Paulson and Robert Bearman, Biohaven Chief Medical Officer."