2017 Anual Ataxia Conference - National Ataxia Foundation

Check this out.
From the National Ataxia Foundation Annual Ataxia Conference this year.
New NAF Executive Director Joel Sutherland talks about the new Ataxia.org website on the way, free Walk n'Roll t-shirts for every participant this year, national sponsors, the new 60 for 60 fundraising campaign and more.

https://www.youtube.com/watch?v=XSXJFRRDlkc&feature=youtu.be




Copied from Youtube
"The National Ataxia Foundation recognizes its 60th Anniversary in 2017. And, while we are proud of our past, we move forward with a passionate focus on the future. We look forward with new energy based on new branding, new communication instruments and new partners. We are ready to start telling a compelling story to garner more institutional funding to build awareness, energize our community and to start building an infrastructure that is able to back our wishes and desires with action. Joel Sutherland, Executive Director presented this look to the future along with Dr Henry Paulson and Robert Bearman, Biohaven Chief Medical Officer."

Rare Disease Study, shared by the National Ataxia Foundation

Only 1 in 5,000 people in the world have #ataxia. To participate in a survey about living with a #RareDisease go to http://bit.ly/2hWZLr2. One week left! Survey closes April 1, 2017.

This original post was made by the National Ataxia Foundation at
https://www.facebook.com/ataxiafoundation/?pnref=story

and I reposted it on the NEO Walk n Roll page at

https://www.facebook.com/NortheastOhioWalknRoll/

General meeting March 30

Hi everyone,

The Next regular meeting is Thursday, March 30, at 6:30 at the Maple Hts. Library, 5225 Library Ln
Maple Heights, OH 44137 (216) 475-5000, As usual, there is a map-quest on the library site.

February social meeting

The February social is at 6:30 on Tuesday, February 28, at Red Robin at 6750 Rockside Rd, Independence, OH 4413. There is a map-quest on  the restaurant site. Because it is Winter, check emails on the 28th in case of snow.

Thanks,
Carmen

URGENT: URGENT: MEETING CANCELLED DUE TO WEATHER

Hello all:
We are cancelling tonight's meeting due to the weather. We will be in touch when we have a date for our next get together, which will be a social gathering.

Thanks,
Carmen

URGENT: CHANGE IN JANUARY MEETING LOCATION

Hello all:
Sorry for the late notice, but our meeting scheduled for January 31st is now going to be at the Maple Hts library instead of the Independence Library. Same time - 6:30 to 8:30 pm

The Maple Hts. address is 5225 Library Lane Maple Hts., OH 44137. Phone 216-475-5000. you can go to the library website for mapquest if needed.

Again-so sorry for the confusion. Looking forward to seeing everyone.

Regards,
Carmen

January Meeting

Trust everyone had a great holiday, Our next meeting is Tuesday, January 31 at the Independence County library at 6:30 P.M. The library website has a map quest from where you may be to their location. Their address is: 6361 Selig Dr. Independence, OH 44131 phone #(216) 447-0160. Lots to discuss including clinical trials, the national conference, etc.