October Meeting

Our next meeting is Tuesday, October 4, 2016 at the Garfield Hts branch of the Cleveland Public Library at 6:30. Guest speaker will be Kevin Pank of Sagemark Consulting to discuss long term financial planning. All are welcome.

Cleveland Support Group helps promote International Ataxia Awareness Day

For Immediate Release:

National Ataxia Foundation Cleveland Area support group meets in Sept. and Oct.
International Ataxia Awareness Day is Sept. 25^th

NORTHEAST OHIO – The National Ataxia Foundation (NAF) – www.ataxia.org - and other ataxia organizations throughout the world have declared Sept. 25, 2016 as International Ataxia Awareness Day to help get the word out about Ataxia. An estimated 150,000 individuals in the United States have Ataxia, a debilitating condition that is a rare and often fatal neurodegenerative disorder. There is currently no cure for Ataxia and limited treatments for it.

Members of the NAF Cleveland area support group - http://ataxiafoundationcleveland.blogspot.com – will recognize the day, after having a social meeting at Applebee’s in Independence on Sep. 15. The group will meet again in October to discuss ongoing health and support issues.

The NAF Cleveland area support group is a group that anyone with Ataxia, or affected by Ataxia or a similar neuromuscular disease, can join for resources and discussions. The group usually meets monthly in a Cuyahoga County Library or in a restaurant for social events. The NAF Cleveland area support group was organized two years ago by Carmen Pieragastini and his wife Virginia (Ginger) who live in Willowick. The support group has around 20 regular members from Fairview to Euclid to Mansfield and everywhere in between.

Carmen developed symptoms of Ataxia about a decade ago, his mother, Eleanor, suffered with the disease and eventually died from it.

Last month the NAF Cleveland area support group organized the Northeast Ohio Walk n’ Roll to Cure Ataxia at the Keystone Pavilion of the Cleveland Metroparks, West Creek Reservation in Parma, Ohio. The event was sponsored by the Pipe Line Development Co. (PLIDCO) of Westlake, OH and attended by about 100 people. More than $12,500 was raised for the NAF and there were prizes auctioned off from the Cleveland Browns, the Lake Erie Monsters, ROAD ID, Levin Furniture, Olmsted Performing Arts and more.

To find out more information about International Ataxia Awareness Day (IAAD) visit - www.ataxia.org/events/international-ataxia-awareness-day.aspx - and get your own IADD kit to help promote the day. The NAF Cleveland area support group and group events and meetings visit http://ataxiafoundationcleveland.blogspot.com.

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Northeast Ohio Walk n' Roll To Cure Ataxia wrap up

On August 14th, 2016 was the Northeast Ohio Walk n' Roll To Cure Ataxia which took place at the Cleveland Metroparks in Parma, OH. There were 81 Walk n' Rollers and overall about attendees enjoyed refreshments, fun and an auction. The event raised more than $12,700 for the National Ataxia Foundation.

Thanks everyone for coming to the Northeast Ohio Walk n' Roll To Cure Ataxia Sunday. We had about 100 people and raised more than our goal of $10,000.

Help us and enjoy a perfect day for a picnic at the Northeast Ohio Walk n' Roll To Cure Ataxia on Sunday, Aug. 14

Hi All:

We have heard from many of you that you will be attending the walk along with family members who will be there to lend support! Participation from our members and their families is crucial to the success of this event. So mark your calendar for Sunday August 14th from 10 am -2 pm.

We will be setting up at 9 am and need help, so please come early if possible. Participants can register from 10-11. We will have the Silent Auction, Chinese Auction and 50/50 raffle following the walk.

So plan on attending and bring your family and friends too! There is plenty of room in the pavilion if anyone wants to pack a picnic and make a day of it.

See you there!

Best,
Carmen

NEO Walk n' Roll To Cure Ataxia gets Bronze Sponsor - Pipe Line Development C. (PLIDCO) of Westlake OH

Pipe Line Development Co.(Pildco) has become a Bronze Sponsor of the NEO Walk n' Roll To Cure Ataxia.
Thank you PLIDCO for helping us cure Ataxia and raise Ataxia awareness. Find out more about PLIDCO at http://www.plidco.com/ and visit the PLIDCO Facebook page at https://www.facebook.com/pipelinerepair/

Upcoming walk n rolls to cure ataxia

• Northeast OH Walk n’ Roll
  Parma, OH – August 14
  


• Michigan Walk n’ Roll
  Ann Arbor, MI – August 27
• Western PA Walk, Run n’ Roll
  South Park, PA – September 24

is anyone interested in attending the Michigan or Western PA Walks?

Contact Carmen and maybe we can arrange a group roadtrip - Carmen's email is

willowpier@roadrunner.com